I've been having some muscle spasms in my right leg recently, bad enough to really interfere with my sleep. (I'm t-9 complete, 15 yrs post). My urine is clear, no skin breakdowns visible. But something did happen a month ago that still scares me today.
So about a month ago I had a slight rectal prolapse following my bowel program. After I get out of the shower it usually goes back just fine, often on its own. But unfortunately, while it was still outside my body I did a dumb thing: turned on the hot water and got distracted. The water ended up burning the skin on my butt, anus, vulva and, most scarily, the rectal prolapse. (Yes I have now turned down the water heater.) Bedrest for 3 weeks took care of the outer burns, everything closed up fine, no infection that I could see.
Now I'm paranoid that something is going on inside my rectum that I cannot see. The doctor seemed more concerned with the skin he could see. I am afraid that perhaps he does not understand SCI well enough to deal with something like this. The spasms in my leg have been bad enough to keep me waking up for the past 5 nights, so now I'm all mentally fragile and frustrated. Cried for an hour upon "waking" this morning. Baclofen is not helping.
I know that no one here has the magic ability to look inside my butt (thank god); maybe I just need some support and kind words from people who understand. There are few SCI people in my town, I can go months without seeing another wheelie (especially another female). In that sense, sometimes I feel like a vampire.
So about a month ago I had a slight rectal prolapse following my bowel program. After I get out of the shower it usually goes back just fine, often on its own. But unfortunately, while it was still outside my body I did a dumb thing: turned on the hot water and got distracted. The water ended up burning the skin on my butt, anus, vulva and, most scarily, the rectal prolapse. (Yes I have now turned down the water heater.) Bedrest for 3 weeks took care of the outer burns, everything closed up fine, no infection that I could see.
Now I'm paranoid that something is going on inside my rectum that I cannot see. The doctor seemed more concerned with the skin he could see. I am afraid that perhaps he does not understand SCI well enough to deal with something like this. The spasms in my leg have been bad enough to keep me waking up for the past 5 nights, so now I'm all mentally fragile and frustrated. Cried for an hour upon "waking" this morning. Baclofen is not helping.
I know that no one here has the magic ability to look inside my butt (thank god); maybe I just need some support and kind words from people who understand. There are few SCI people in my town, I can go months without seeing another wheelie (especially another female). In that sense, sometimes I feel like a vampire.
recal prolapse: burnt!
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