Ever since I had a mitrofanoff channel put in a couple of months ago, I've had the same problem. The channel shrinks until (a) the opening looks considerably smaller and (b) it becomes difficult to fit in a size 14 catheter.
This is a problem for me because I'm extremely difficult to catheterise urethrally so I've basically got the mitrofanoff and that's it. If I can't get a catheter in then I have to go down to ER and have them catheterise me with a cystoscope and a guide wire which is hellishly painful for me.
So anyway, the opening becomes more difficult and so I stick a catheter in and leave it in for a week or two. Then I take the catheter out and within a day I'm back to square 1 again. This has happened three times and I'm sick of it. What should I do? Thanks in advance.
This is a problem for me because I'm extremely difficult to catheterise urethrally so I've basically got the mitrofanoff and that's it. If I can't get a catheter in then I have to go down to ER and have them catheterise me with a cystoscope and a guide wire which is hellishly painful for me.
So anyway, the opening becomes more difficult and so I stick a catheter in and leave it in for a week or two. Then I take the catheter out and within a day I'm back to square 1 again. This has happened three times and I'm sick of it. What should I do? Thanks in advance.
My Mitrofanoff keeps shrinking!
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