I'm at a loss and looking for advice or suggestions.
I have a 17 year old cervical fusion. I've had increased pain and spasticity that has taken me from being unmedicated to taking about 20 pills a day. I'm on Indian health care so everything moves rather slowly as far as referrals go.
My problem is bed-wetting. If I fall asleep, I will wet myself. Initially, it began with me waking to go to the bathroom between 3 and 6 times a night now I just sleep through it. I've got recurrent UTIs, bladder hesitancy during the day and incontinence at night. CT showed a 6mm kidney stone, but urologist insists it can't be causing my pain or problems because it's in the lower lobe, not touching anything. I've got an mri in a week but I won't see my neurologist until October.
I am currently wetting through a maximum capacity pull-up type diaper and soaking my pajamas and a "puppy pad". My urologist told me in no uncertain terms that I was to not insert an indwelling catheter because I have full bladder capacity and a catheter would cause my bladder to shrink. Part of my bladder issues is medication. I'm on 90 mg of baclofen a day and my spasticity is still barely controlled.
Im spending quite a bit of money on bladder products every month that I can barely afford.
What do I do? Any suggestions on better products I could be using? Any thoughts on whether I should ignore the doc and put in a catheter anyway?
I have a 17 year old cervical fusion. I've had increased pain and spasticity that has taken me from being unmedicated to taking about 20 pills a day. I'm on Indian health care so everything moves rather slowly as far as referrals go.
My problem is bed-wetting. If I fall asleep, I will wet myself. Initially, it began with me waking to go to the bathroom between 3 and 6 times a night now I just sleep through it. I've got recurrent UTIs, bladder hesitancy during the day and incontinence at night. CT showed a 6mm kidney stone, but urologist insists it can't be causing my pain or problems because it's in the lower lobe, not touching anything. I've got an mri in a week but I won't see my neurologist until October.
I am currently wetting through a maximum capacity pull-up type diaper and soaking my pajamas and a "puppy pad". My urologist told me in no uncertain terms that I was to not insert an indwelling catheter because I have full bladder capacity and a catheter would cause my bladder to shrink. Part of my bladder issues is medication. I'm on 90 mg of baclofen a day and my spasticity is still barely controlled.
Im spending quite a bit of money on bladder products every month that I can barely afford.
What do I do? Any suggestions on better products I could be using? Any thoughts on whether I should ignore the doc and put in a catheter anyway?
Bladder management - enuresis
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