So more or less I deal with three types of spasms on a daily basis.
The first the seizures these could last anywhere from a minute to three minutes and go on and off however many times basically you start vibrating, like enough to make the bed and my chair rattle and the screws shake. Legs seem to take the brunt of it, hands and arms also get in on it
The jumps, these are used to be the most common, but now I'd say second. Usually only legs but the stomach and hands can get in on it as well basically the muscles clinch in my case if I'm laying down my legs shoot up and my knee bends or my leg shoots straight, this can't happen with the chair but it's less intense still very frustrating. These can happen simultaneously with the seizures.
Finally The big ones these don't happen very often, you can feel these common even with no sensation your body just feels different is it starting to tense , they're more prominent when you have an infection or something really bad. They moves like the jumps, but they are very very powerful I've been thrown from my electric wheelchair, and commode before they launch my entire body forward . Or I'll be sitting peacefully and my stomach will shoot forward like my bellybutton wants to pop andmy head will shoot back all at once. All of these affect my entire body
so I deal with these of the daily basis, I only take 40 mg of baclofen but lately I've been taking diazepam at night because I'm just fucking sick of it . Physiotherapy helps but it's only temporarily they come back before the night is over, I don't want to take a pump and don't want to take more Baclofen because that drug is going to affect recovery and enrollment in clinical trials. Two years I've been dealing with something very frustrating no matter what I do every night the spasms will keep me up right it's just part of this life. But they freak nonstop and then what are they do the knee will shoot up 90? and then both knees will fall to the right and then will just stay there all night, no more spasms if there are any they are small and don't move my position. Now by morning I don't have sensation like I can't feel touch but my back aches because I've laid like that all night, even my knee seems to hurt after it and obviously obviously it's horrible for the joints and the spine. Now sometimes if someone's available they will straighten my legs, but it is futile because almost instantly they freak out jump all over until they flop to the right and then they'll stay there. After three years the whole thing is getting beyond frustrated like I want to cut my legs, I really want to cut them I want to beat them with a hammer I do smash my hands off the walls to get them to stop when they're freaking out, and usually it works in fact almost all the time it works. That this is a Catch-22 because I want my legs to be healthy so I can get them working again hopefully but the word amputations is starting to sound like a beautiful thing
The first the seizures these could last anywhere from a minute to three minutes and go on and off however many times basically you start vibrating, like enough to make the bed and my chair rattle and the screws shake. Legs seem to take the brunt of it, hands and arms also get in on it
The jumps, these are used to be the most common, but now I'd say second. Usually only legs but the stomach and hands can get in on it as well basically the muscles clinch in my case if I'm laying down my legs shoot up and my knee bends or my leg shoots straight, this can't happen with the chair but it's less intense still very frustrating. These can happen simultaneously with the seizures.
Finally The big ones these don't happen very often, you can feel these common even with no sensation your body just feels different is it starting to tense , they're more prominent when you have an infection or something really bad. They moves like the jumps, but they are very very powerful I've been thrown from my electric wheelchair, and commode before they launch my entire body forward . Or I'll be sitting peacefully and my stomach will shoot forward like my bellybutton wants to pop andmy head will shoot back all at once. All of these affect my entire body
so I deal with these of the daily basis, I only take 40 mg of baclofen but lately I've been taking diazepam at night because I'm just fucking sick of it . Physiotherapy helps but it's only temporarily they come back before the night is over, I don't want to take a pump and don't want to take more Baclofen because that drug is going to affect recovery and enrollment in clinical trials. Two years I've been dealing with something very frustrating no matter what I do every night the spasms will keep me up right it's just part of this life. But they freak nonstop and then what are they do the knee will shoot up 90? and then both knees will fall to the right and then will just stay there all night, no more spasms if there are any they are small and don't move my position. Now by morning I don't have sensation like I can't feel touch but my back aches because I've laid like that all night, even my knee seems to hurt after it and obviously obviously it's horrible for the joints and the spine. Now sometimes if someone's available they will straighten my legs, but it is futile because almost instantly they freak out jump all over until they flop to the right and then they'll stay there. After three years the whole thing is getting beyond frustrated like I want to cut my legs, I really want to cut them I want to beat them with a hammer I do smash my hands off the walls to get them to stop when they're freaking out, and usually it works in fact almost all the time it works. That this is a Catch-22 because I want my legs to be healthy so I can get them working again hopefully but the word amputations is starting to sound like a beautiful thing
Spasms
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