Jimmy Carter was president.:lovingeye
If I can last 4 more hours, I will have my first UTI-free year since ..
jeudi 31 décembre 2015
If I can last 4 more hours, I will have my first UTI-free year since ..
If I can last 4 more hours, I will have my first UTI-free year since ..
Nighttime Foot/Ankle Spasm
For over three months I have been dealing with spasms in my left ankle. They always happen at night, usually around 3 or 4 in the morning. Once the spasms start, they come about 20 seconds apart, which makes it impossible to sleep. Each spasm starts with a tightening of a muscle (or tendon?) just below the ankle bone (bottom of the fibula). After a couple of seconds, there's a very quick spasm, which is a dorsiflexion of the foot. After the spasm, I can feel a relaxation of the muscles in that area until it starts all over again.
I have tried several different approaches to eliminate the spasms.
▪ Raising the foot of the bed
▪ Raising the foot and head of the bed
▪ Placing a bolster under my knee
▪ Placing a folded blanket under my calf
▪ Taking 2 ibuprofen earlier in the evening
▪ Increasing my baclofen from 60 mg to 80 mg per day
▪ Taking a Benadryl to help sleep through the spasms
▪ ? and various combinations of the above
On occasion, I've gone through 1-3 nights without spasms and thought that I had it licked. So far, they've always come back.
Just for reference, I have a C2-C3 incomplete injury. I stand every day using a bar attached to the wall that I hang on to for balance. I also use a modified spinning bike to exercise my legs about 2 or 3 times a week. (I sit behind the bike in a cushioned chair and use bicycle shoes that latch onto the pedals.) While sleeping, I have cushions at the bottom of the bed to prevent ankle drop. My wife has examined my foot every night and has found no swelling or redness in that area. I have absolutely no discomfort during the day. I've had my podiatrist and physiatrist examine the area and they did not see or feel anything unusual.
Any ideas? I'm not sure what my next steps should be. Possibly get an x-ray? Could this be an RLS issue?
I have tried several different approaches to eliminate the spasms.
▪ Raising the foot of the bed
▪ Raising the foot and head of the bed
▪ Placing a bolster under my knee
▪ Placing a folded blanket under my calf
▪ Taking 2 ibuprofen earlier in the evening
▪ Increasing my baclofen from 60 mg to 80 mg per day
▪ Taking a Benadryl to help sleep through the spasms
▪ ? and various combinations of the above
On occasion, I've gone through 1-3 nights without spasms and thought that I had it licked. So far, they've always come back.
Just for reference, I have a C2-C3 incomplete injury. I stand every day using a bar attached to the wall that I hang on to for balance. I also use a modified spinning bike to exercise my legs about 2 or 3 times a week. (I sit behind the bike in a cushioned chair and use bicycle shoes that latch onto the pedals.) While sleeping, I have cushions at the bottom of the bed to prevent ankle drop. My wife has examined my foot every night and has found no swelling or redness in that area. I have absolutely no discomfort during the day. I've had my podiatrist and physiatrist examine the area and they did not see or feel anything unusual.
Any ideas? I'm not sure what my next steps should be. Possibly get an x-ray? Could this be an RLS issue?
Nighttime Foot/Ankle Spasm
Is Disability Activism dead?
This topic came to mind yesterday and has been gurgling below the surface for a while. I scouted music stores in my area, looking to pick up a few items for my beginner clarinet studies. (Trying to improve my lungs). Found several stores, one specifically for wind instruments and we headed out there. We're two wheelers, and saw a step at the entrance and no handicapped parking in the small parking lot. My first thought was Dang, why didn't I call ahead. "Call ahead" is usually my rule when visiting a new place, but this time there was a photo at the website and it looked like a new building, and wow, all wind instrument stuff.
I was looking forward to easy sheet music for beginners so I could move on from "Twinkle, twinkle, little star...." and Go Tell Aunt Rhodie".
We pulled over to the side of the parking lot and I got out our trusty phone book - kept in the van for such occasions. Found another store titled with the general term "Music ....". Yep, it was accessible and yep, parked sideways in an outlier place as the handicapped parking spaces would not work for unloading our side lift. Inside, it was almost ALL guitar related. They did have one item on my list, a neck strap for clarinet in a dusty little bag hanging on the wall on an S hook. The fellow did not know how to attach it to a clarinet - it was strange looking - so he kindly looked it up on the Internet.
But I'm really posting about my concern about the state of disability activism. No, I'm not bent out of shape about one more inaccessible store, just wondering if anyone out there on CC knows if there are any more activist groups focused on jobs, housing, accessibility, discrimination, useful technology, equipment needs, etc. etc. It's the end of the year.....time to review the gains made in disability rights. Just heard a review of gains made in the Women's Rights movement. Duh.....where are We at?
Since today's my birthday, and I'm pretty old, I'm wondering who is doing anything to improve our everyday lives. I helped block Madison Avenue in NYC decades ago for Nixon to pass the regulations for the Rehabilitation Act and I've complained along the way, but want to see others carry on. I never see much in the press about disability issues, unless it's about someone learning to walk with devices. What about the rest of the story?? Will it be a Happy New Year?
I was looking forward to easy sheet music for beginners so I could move on from "Twinkle, twinkle, little star...." and Go Tell Aunt Rhodie".
We pulled over to the side of the parking lot and I got out our trusty phone book - kept in the van for such occasions. Found another store titled with the general term "Music ....". Yep, it was accessible and yep, parked sideways in an outlier place as the handicapped parking spaces would not work for unloading our side lift. Inside, it was almost ALL guitar related. They did have one item on my list, a neck strap for clarinet in a dusty little bag hanging on the wall on an S hook. The fellow did not know how to attach it to a clarinet - it was strange looking - so he kindly looked it up on the Internet.
But I'm really posting about my concern about the state of disability activism. No, I'm not bent out of shape about one more inaccessible store, just wondering if anyone out there on CC knows if there are any more activist groups focused on jobs, housing, accessibility, discrimination, useful technology, equipment needs, etc. etc. It's the end of the year.....time to review the gains made in disability rights. Just heard a review of gains made in the Women's Rights movement. Duh.....where are We at?
Since today's my birthday, and I'm pretty old, I'm wondering who is doing anything to improve our everyday lives. I helped block Madison Avenue in NYC decades ago for Nixon to pass the regulations for the Rehabilitation Act and I've complained along the way, but want to see others carry on. I never see much in the press about disability issues, unless it's about someone learning to walk with devices. What about the rest of the story?? Will it be a Happy New Year?
Is Disability Activism dead?
mercredi 30 décembre 2015
Neuroplasticity of the Optic Nerve
I grew up with an eye condition called "amblyopia" also known as "lazy eye." My right eye is significantly weaker than my left eye. But this a condition of the nervous system more than it is a condition of the eye itself. I wore an eye patch on my left as a child but the doctors told me that my condition would not improve as I reached adulthood. Most doctors today have told me that my condition will not improve because most of the neural connections that led from my right eye to my brain were hardly made. I've attached an image of an MRI of my head where there is a clear difference between the innervation of the left eye as opposed to the right eye. One doctor however, told me that if I continue to cover my eye today I can improve it. After one month of covering my good eye, I went back for a re-examination and found that the vision in my weak eye had actually improved quite a bit. I also felt like my vision improved throughout every day life. But my question is: is there a physiological explanation for this that could possibly lead to a cure? Or is it simply psychological because I became more conscious of the vision in my right eye? Could my wearing of an eye patch on my good eye induce neuroplasticity of the innervation on my weak eye that could improve the condition?
Thank you very much,
Thank you very much,
Neuroplasticity of the Optic Nerve
Mondi pump, used charcoal filter, 3 co2 tanks/2 regulators
Mondi water sump pump $60 ( 3months use, once a week)
3 x 20lbs co2 tanks $60 each
2 co2 manual regulators $40 each
used charcoal canister with reducer $40
im in Lynnwood area
pm for pictures
3 x 20lbs co2 tanks $60 each
2 co2 manual regulators $40 each
used charcoal canister with reducer $40
im in Lynnwood area
pm for pictures
Mondi pump, used charcoal filter, 3 co2 tanks/2 regulators
name of the woman bringing charges against Cosby?
If Mr. Cosby's reputation is gonna be dragged through the mud, I feel it's only fair that this info be put out there...for ALL to see and bare witness to. What's her name? What's her sexual history? Has she had an abortion, if so how many? Did she make a habit of taking drugs handed to her by strange men, and then going "back to their place?" This should be made public.
Maybe even offer to pay men that she's slept with that will come forward to talk on O'Reilly....now THAT would pull some fox viewers ;)
Maybe even offer to pay men that she's slept with that will come forward to talk on O'Reilly....now THAT would pull some fox viewers ;)
name of the woman bringing charges against Cosby?
TiLite Service
I am getting to my wits end with TiLite. Concerns have been raised since they have been bought out and I have hoped it is was nothing.
On 12/09/2015 I sent an email asking a question about a CAD and received an answer right back asking me for more information, which I answered and I got this response, "I will make sure I get this information to the correct people.". On 12/14 I followed up asking about the progress, I got no response. On 12/17 I sent an email to the generic "info" email address to TiLite and asked if they were open, thinking maybe they closed for Christmas. Again, I got an email right back saying they were open, so I responded to that email address with the same original question and I got no reply.
I have left a voice message with the person I was dealing with asking them to call me, no call. Yesterday I sent yet another email to the person I originally dealt with and the generic "info" email asking to please get back with me, again, no reply!! My question isn't that difficult.
On 12/09/2015 I sent an email asking a question about a CAD and received an answer right back asking me for more information, which I answered and I got this response, "I will make sure I get this information to the correct people.". On 12/14 I followed up asking about the progress, I got no response. On 12/17 I sent an email to the generic "info" email address to TiLite and asked if they were open, thinking maybe they closed for Christmas. Again, I got an email right back saying they were open, so I responded to that email address with the same original question and I got no reply.
I have left a voice message with the person I was dealing with asking them to call me, no call. Yesterday I sent yet another email to the person I originally dealt with and the generic "info" email asking to please get back with me, again, no reply!! My question isn't that difficult.
TiLite Service
Want to Buy a Braun Handicap Mini Van Late Model From Original Owner
Would like to buy a late model Braun handicap van from original owner.
If you have or know of one for sale please let me know.
Thanks
If you have or know of one for sale please let me know.
Thanks
Want to Buy a Braun Handicap Mini Van Late Model From Original Owner
What type of quick release valve connector should I get for a Schrader valves?
Hi, I recently purchased a cheap 12V 140psi compressor. It's a good little compressor and inflates my Schwalbe MP tyres in no time. The valve connector is a threaded brass barrel a bit like the connector supplied with bicycle pumps. But the the trouble is when it comes to unscrewing and removing the connector I can't unscrew it fast enough and by the time I have I've lost 80% of the air in the tyre. I've seen these two quick release connectors on eBay and thought they might be better but don't know which one to get? The plastic thumb-lock one looks a bit flimsy and I'm concerned that it might blow off while inflating the tyres, and that could be dangerous as compressed air is nasty stuff.
I was hoping someone in this forum might have some thoughts? How do you folks inflate your tyres? I currently use a HP cycle track pump that is really good but I am not strong enough to get any more than about 80psi into the tyres and even then it's a real struggle.
I was hoping someone in this forum might have some thoughts? How do you folks inflate your tyres? I currently use a HP cycle track pump that is really good but I am not strong enough to get any more than about 80psi into the tyres and even then it's a real struggle.
What type of quick release valve connector should I get for a Schrader valves?
Calmoseptine???
Does a lot of Calmoseptine creme affect how fast a small sore heals,,? The nurse said it's from moisture and has small open area. It's taking a long time to heal, 3 weeks now. It's on back of upper right thigh where my butt meets the thigh and I've stayed in bed last 3 days. Is there anything else I can try?
Thanks
Thanks
Calmoseptine???
Motorcycles and Scooters
I am an L1 incomplete and have recovered to the point that I think I am able to ride on two wheels again. I have been considering options, ie a motorcycle, scooter or even maybe a 3-wheeled Can Am Spyder.
Is there anyone out there that rides? I have been leaning more towards a maxi-scooter like a Honda Silverwing because of the hand controls.
Any thoughts/comments appreciated.
Is there anyone out there that rides? I have been leaning more towards a maxi-scooter like a Honda Silverwing because of the hand controls.
Any thoughts/comments appreciated.
Motorcycles and Scooters
mardi 29 décembre 2015
dispensary worker before jan 2013
my colleagues and i are looking for someone who has worked at a dispensary before jan 2013. must have proof. w2 or pay stubs. will pay
dispensary worker before jan 2013
The right to die--ethical dilemmas in persons with spinal cord injury. SCI Nurse?
http://ift.tt/1OwXygB
This is an article on PubMed that sounds interesting. However, this link is to the abstract. Links to other articles from this source have been shared. Is it something that Care Cure has access to and can share?
I've been researching this topic for some time. Most information seems to be focused around the terminally ill. I have no desire to end my life (at this point). However, difficulties with extreme pain and reading about others has me questioning how I would handle certain circumstances. I already have an advanced directive and other legal items in place.
My goal with this post is to educate myself (and potentially others) about the topic as it relates to spinal cord injury. I'm not aiming for a discussion about suicide. There are many considerations specific to conditions that are not considered terminal. This article sounds like a good example. Please feel free to suggest others as well.
If this cannot be shared, it's fully understandable. Also, if this topic is not appropriate for Care Cure please let me know. Thank you in advance for any assistance.
This is an article on PubMed that sounds interesting. However, this link is to the abstract. Links to other articles from this source have been shared. Is it something that Care Cure has access to and can share?
I've been researching this topic for some time. Most information seems to be focused around the terminally ill. I have no desire to end my life (at this point). However, difficulties with extreme pain and reading about others has me questioning how I would handle certain circumstances. I already have an advanced directive and other legal items in place.
My goal with this post is to educate myself (and potentially others) about the topic as it relates to spinal cord injury. I'm not aiming for a discussion about suicide. There are many considerations specific to conditions that are not considered terminal. This article sounds like a good example. Please feel free to suggest others as well.
If this cannot be shared, it's fully understandable. Also, if this topic is not appropriate for Care Cure please let me know. Thank you in advance for any assistance.
The right to die--ethical dilemmas in persons with spinal cord injury. SCI Nurse?
urodynamics or not?
I'm a T7 incomplete with sensation and sensitivity below the level of injury. I'm almost 30 years post injury. Recently I've been having some weird sensations (soreness) in the bladder and penis,and thought I might have a UTI, but the urine culture came back negative. I've had kidney and bladders stones int he past and I'm not sure what this is. So I made an appointment to see a urologist. The Urologist is ordering a urodynamics test, but I am concerned that this test may not work for me as I usually void the bladder to urinate. I just don't want to pay for and go through any unnecessary testing especially since I have sensitivity down there. Any thoughts?
urodynamics or not?
Expired magic bullets question
I buy my bullets a 100 at a time, only problem is they usually expire before I use them all. My current ones expired in November and I still have like 20 left. I keep them in the fridge hoping that makes them last longer. Would they still be effective after being expired that long?
Thanks
Thanks
Expired magic bullets question
Sk#1 flower available
I have some extra flower of sk#1. Won the dope cup strain of the month in March 2013. All tops no lower larf.
1/4- 500
1/2- 1000
1lb- 1900
1/4- 500
1/2- 1000
1lb- 1900
Sk#1 flower available
Acute Flaccid Myelitis
The San Diego Union-Tribune, Dec. 28, 2016
Polio-like syndrome has no known cause
Nearly 60 cases of a rare polio-like syndrome have been identified in California since 2012, a study in the Journal of the American Medical Association reported Tuesday. And despite intensive investigation, the cause remains unknown.
Called acute flaccid myelitis, the syndrome is characterized by a quick onset of muscle weakness in one or more limbs, along with evidence of spinal cord motor neuron damage. Children are most affected. Out of the 59 cases, the median age was 9, with 50 cases in people younger than 21.
The illnesses occurred between June 2012 and July 2015. In most cases, the weakness lasted for at least several months. For the 45 patients with follow-up data, 38 had persistent weakness at the followup. The followup occurred at a median time of 9 months, spread over a range of 3 to 12 months. Two patients, both immune-compromised, died within 60 days of diagnosis.
"Although the syndrome described is largely indistinguishable from poliomyelitis on clinical grounds, epidemiological and laboratory studies have effectively excluded poliovirus as an etiology," the study stated. Its first author was Dr. Keith Van Haren, a neurologist at Stanford University Medical Center.
Researchers examined records collected at the request of the California Department of Public Health, which acted after learning of three such cases in the fall of 2012. This was unusual, the study stated, because no such cases had been identified in the previous 14 years.
(for the rest of this story)
http://ift.tt/1NNYrOn
(KLD)
Polio-like syndrome has no known cause
Nearly 60 cases of a rare polio-like syndrome have been identified in California since 2012, a study in the Journal of the American Medical Association reported Tuesday. And despite intensive investigation, the cause remains unknown.Called acute flaccid myelitis, the syndrome is characterized by a quick onset of muscle weakness in one or more limbs, along with evidence of spinal cord motor neuron damage. Children are most affected. Out of the 59 cases, the median age was 9, with 50 cases in people younger than 21.
The illnesses occurred between June 2012 and July 2015. In most cases, the weakness lasted for at least several months. For the 45 patients with follow-up data, 38 had persistent weakness at the followup. The followup occurred at a median time of 9 months, spread over a range of 3 to 12 months. Two patients, both immune-compromised, died within 60 days of diagnosis.
"Although the syndrome described is largely indistinguishable from poliomyelitis on clinical grounds, epidemiological and laboratory studies have effectively excluded poliovirus as an etiology," the study stated. Its first author was Dr. Keith Van Haren, a neurologist at Stanford University Medical Center.
Researchers examined records collected at the request of the California Department of Public Health, which acted after learning of three such cases in the fall of 2012. This was unusual, the study stated, because no such cases had been identified in the previous 14 years.
(for the rest of this story)
http://ift.tt/1NNYrOn
(KLD)
Acute Flaccid Myelitis
(KDL), help me navigate these urological issues
Hello. I am an RN specializing in wound ostomy and continence care. I have worked with some community based spinal cord patients for the past two years. When I started working with SCI patients, I discovered an astounding knowledge deficit concerning spinal cord care in both myself and other clinicians in my area. I enjoy research and have tried familiarize myself with the liturature concerning best management practices in SCI - the PVA guides, Consortium for Spinal Cord Medicine guidelines for Healthcare providers, a few current spinal cord medicine books, and a number of meta analysis, research trials, and published case studies. I have also learned many things from the nurses and SCI folks discussing problems and solutions on these messageboards. The Care Cure community is has been a fantastic resource for me. I felt compelled to join because I am having a lot of trouble with a particular patient's bladder issues, and even moreso, his urologist. The patient is 38, 22 years post-injury, a c4 c5. Initially he was managed with a condom catheter. In 2004 this was deemed no longer effective for reasons unknown to me (though I imagine he was unable to maintain a low pressure system) and he switched to intermittant catheterization. Around this time his urologist surgically "nicked" his sphincter , the patient refers to it as a sphincterotomy, though I am unsure if it was this or bladder neck surgery because he remains fully continent of urine. He was also placed on 15mg daily of enablex along macrobid and bactrim on alternating months for antibacterial prophylaxis. His urologist also prescribed 30 mls of acetic acid 0.25% instilled into the bladder BID. Roughly 5 years ago, the patient started using a Foley at night, and instead of true intermittant cathing, removed the Foley in the morning, instilled the acetic acid, wait 5 or so hours without cathing until dysreflexic, then start a red rubber IC cath, attach to a leg bag, leave the cath in for most of the day, instill acetic acid again and remove for a few hours in the evening, transfer to bed and start a foley. He drinks about 4000 milliliters of water a day. No utis for several years this way. Last Christmas, around the time I met him, the patient developed a stage I pressure ulcer on his coccyx. He remain in bed (low air loss) for a short time, then resumed regular activities. Shortly thereafter, it reappeared. This time he remained in bed for two weeks, ordered a new chair and a new cushion and was evaluated for body positioning, seating, and pressure mapping, improved his diet and skin check regimen and started taking pressure brakes on a regular basis when up. The pressure ulcer has not returned. Shortly after this he contracted bacterial conjunctivitis that became a respiratory infection treated with antibiotics, did not turn into pneumonia, but he did not eat well during the two weeks it took to recover and developed what I consider pretty severe constipation where he did not have a bowel movement in 2 weeks. His physiatrist instructed him to take an enema for this. Which he did. But without a catheter in place or emptying his bladder beforehand, so he was unable to discern bowel movement dysreflexia from full bladder dysreflexia, and as a result became significantly dysreflexic with a blood pressure of over 200, had a seizure, and was taken to the ER via Life Flight helicopter. I imagine the culprit was the overly distended bladder, since once he was hospitalized they drained over a thousand milliliters out and his dysreflexia immediately subsided. The medical staff at the hospital found no correlation between his seizure, his blood pressure, and his bladder and bowel issues, but that is a story for another day. While hospitalized for this seizure, it was determined that he had a UTI with e coli and enterococcus faecalis, and that he had hypoalbuminia and non specified anemia, which he has attempted to correct though diet. They gave him IV antibiotics for 2 days, he went home and resumed the same foley/ic left in place routine, brought in a urine specimen to his urologist, was told he was still infected, and this is where the antibiotic saga begins. For the next 6 months, his urologist did not physically examine him other than a renal scan, but prescribed at least 10 different oral antibiotics. The pattern was this: two weeks of an antibiotic, bring in a bacteruric urine sample, culture it, grow a different organism ( typically a back and forth between Enterococcus faecalis and e.coli, once it was Klebsiella pneumonia) prescribe two weeks of a different antibiotic, culture it, grow out a new organism another antibiotic, etc. The patient became far sicker than he was previously. His urine became malodorous and cloudy, he experienced new onset edema under his eyes, around his face and hands, and when he was on minocycline I saw what I believe was bilirubin in his urine and yellowing of his eyes. Mild fever that came and went a few times, occational chills. Still on the macrobid and bactrim in between the other antibiotics. I grew concerned about kidney function in light of the edema and heavy antibiotic use so a creatinine clearance test was ordered. This serum creatinine was 0.4, and the urologists office never obtained lab results from the urine collected or did an actual clearance ratio, adjusted for SCI or otherwise, so it was a waste of time and I have still no idea about creatinine clearence. Of course, the patient continued to have non-sterile urine while using the foley so then along with continued culturing and antibiotics, the urologist added daily intravesical installation of potassium premagenate after removing the Foley each AM, rinsing the bladder with 60 cc's of saline after each cath, and installation of acetic acid after every cath. This did not help either. In September the patient finally met with his urologist and arranged a cystoscope. He requested urodynamic testing, but every time he went in for it they would say he was infected and it could not be done. However, I am fairly certain with good timing it could be done because during the course of antibiotics, his urine would clear up and he would appear uninfected for a few days, then the symptoms would return. He had the cystoscope done, the urologist said it was unremarkable apart from redness in the dome of the bladder which he attributed to the balloon of the Foley. He said go back to IC. He said the urine " looked terrible" and gave him 2 days of IV antibiotics in the hospital. He also stated that sterile urine was his treatment goal, and "there was no reason for him to be having UTIs with all the water he drinks and doing IC. Said he would culture the urine again in 2 weeks and a month. This experience was enough to get the patient to adopt the following methods for bladder management:
Continuing with 4000 milliliters of water a day, stopping at around 6 p.m.
Ensuring that all nurses that cath him use aseptic technique and standard hand washing.
Using single use hydrophilic catheters and aseptic technique to fully empty the bladder every 3 to 4 hours.
Aiming to empty his bladder before it fills over 500 mls, though realistically he takes out anywhere between 400 and 600 every time he caths.
Avoiding constipation and meticulously cleaning up after the bowel program. The patient now takes colace and benefiber and does bowel program three times a week vs two times a week, constipation is resolved.
Showering and washing the perineal area with chlorhexidine soap after the bowel program.
Using saline as a flush twice a day or when sediment appears excessive, though I feel that excessive sediment is pretty subjective and am not sure if it is entirely beneficial to flush the bladder when evidence seems to point otherwise. He does not produce a lot of sediment. His urologist also wanted him to put in acetic acid 3 times a day. When the patient started getting dysreflexia from each acetic acid installation, he finally stopped doing it. His urologist says the acetic acid will prevent stones and infection, yet the actual product information states that in order to acidify the urine to 5.0 and prevent pathogen colonization, it would require a continuous bladder irrigation of atleast 1000 milliliters per day. I think the acetic acid is an exercise in futility and possibly hurting the mucosa of the bladder.
The patient is concerned with antimicrobial resistance and aplastic anemia and renal deterioration, as am I, and he attempted to stop the prophylactic macrobid and bactrim when discharged from the hospital. However, a few days later he had the mild dysreflexia chills( but no elevation in BP), cold clammy sweats, and semi cloudy urine. He started to take macrobid and all of these things resolved. After 2 weeks the urine became somewhat cloudy with increased sediment. He then switched to the scheduled bactrim. Urine remained clear for a few days, then sediment reappeared, a few days later he experienced cold clammy sweats for two days which then resolved. He took in his urine sample and they cultured it, said he had ecoli, and prescribed ceftin again. Instead of taking the ceftin, he switched back to macrobid, and the urine again was crystal clear and all symptoms resolved for about a week. Then another cold clammy sweat day, small amounts of sediment.
Apart from this issue, he is a healthy individual who remains active, works, and is able to do what he needs to do.
Mostly he is asymptomatic. Gets the occasional cold clammy sweats, which are a new thing. Yet his urologist continues to stress the goal of sterile urine, but this does not seem it obtainable, as he is sterile when on antibiotics for a time, and then quickly shows signs of bacteruia once the antibiotics stop or he remains on the prophylactic for more than a week. Ri have read about the nature of these infecting organisms, and how they can treat biofilms and hide and hide in intracellular spaces. I think that when he is on macrobid, his bladder is colonized with entero coccus resistant to it and free of e.coli, and when he is on bactrim, his bladder is colonized with E coli. I think that no matter what he does there is something that causes it to flare up every time the antibiotics are stopped. My main concern is if this is clinically significant or not. He has had those cold sweats three times for a few hours at abtime, usually when he gets out of bed, since September and this is disconcerting, but he has no other symptoms. Id like to know what is causing them. His skin, his bowel program, his energy and overall genitourinary function seem to be improved snice the IV antibiotics in September and discontinuing the foley. I do not have a complete copy of his lab results on hand, but on the phone I was told that the last urine sample two weeks ago grew over 100000 CFU of e. Coli, and had 5-10 white blood cells per field. There is little or no hematuria. there was sediment in his urine which resolved with macrobid. Because he feels like his urine looks better on macrobid than bactrim, he has elected to stay on it. The patient finds it hard to accept bacterial colonization because his urine was sterile for so long. My main concerns are this:
Wit those lab results in this type of situation, is this asymptomatic bacteria or is this a UTI?
Should his bladder be reassessed to see if there is still redness in the dome, or even biopsief, in light of the fact he used a foley for a long time and used to smoke?
Would he benefit from urodynamic testing?
Should he undergo further evaluation for stones, as in the past he formed a small stone in his kidney that spontaneously passed without intervention, according to his urologist. The renal scan came back negative for stones, but I know that sometimes they are hard to find and can be obscured by things like constipation. I was told that a prostate infection or a stone would mean the patient would only have recurrent infection with the same microbe. But if the majority of spinal cord injury patients have polymicrobial UTI, would an infected prostate or a stone not be polymicrobial as well?
Is there anything else you can recommend? I believe that his current urologist will endlessly culture and prescribe antibiotics and do no further evaluation uness prompted by the patient. He would like to know what to ask for. I feel that he should get a referral because the urologist himself has been fairly incompetent with any feedback, follow up, or general communication. I am also unsure how familiar he is with current best practice guidelines for neurogenic bladder. The patient was injured on the job and has workers compensation and can request a referral if his physiatrist feels it's warranted. Do you think he would benefit from going to the University of Alabama in Birmingham for an assessment of his urological situation? Or even just a general SCI check up? He has not had blood work done in ages, never had a cardiac exam, assessment for gallstones or anything else for that matter except a renal scan and periodic urine cultures.
This year of health problems and clammy sweats is a new phenomenon and he is concerned. Don you have any recommendations for who to see about urological issues at UAB? I know they literally wrote the book on some aspects of spinal cord management. There is a lack of SCI doctors here.
I know this is a very long post, but he is very upset and this is the one thing I felt I hadn't done. Thank you for your time.
Continuing with 4000 milliliters of water a day, stopping at around 6 p.m.
Ensuring that all nurses that cath him use aseptic technique and standard hand washing.
Using single use hydrophilic catheters and aseptic technique to fully empty the bladder every 3 to 4 hours.
Aiming to empty his bladder before it fills over 500 mls, though realistically he takes out anywhere between 400 and 600 every time he caths.
Avoiding constipation and meticulously cleaning up after the bowel program. The patient now takes colace and benefiber and does bowel program three times a week vs two times a week, constipation is resolved.
Showering and washing the perineal area with chlorhexidine soap after the bowel program.
Using saline as a flush twice a day or when sediment appears excessive, though I feel that excessive sediment is pretty subjective and am not sure if it is entirely beneficial to flush the bladder when evidence seems to point otherwise. He does not produce a lot of sediment. His urologist also wanted him to put in acetic acid 3 times a day. When the patient started getting dysreflexia from each acetic acid installation, he finally stopped doing it. His urologist says the acetic acid will prevent stones and infection, yet the actual product information states that in order to acidify the urine to 5.0 and prevent pathogen colonization, it would require a continuous bladder irrigation of atleast 1000 milliliters per day. I think the acetic acid is an exercise in futility and possibly hurting the mucosa of the bladder.
The patient is concerned with antimicrobial resistance and aplastic anemia and renal deterioration, as am I, and he attempted to stop the prophylactic macrobid and bactrim when discharged from the hospital. However, a few days later he had the mild dysreflexia chills( but no elevation in BP), cold clammy sweats, and semi cloudy urine. He started to take macrobid and all of these things resolved. After 2 weeks the urine became somewhat cloudy with increased sediment. He then switched to the scheduled bactrim. Urine remained clear for a few days, then sediment reappeared, a few days later he experienced cold clammy sweats for two days which then resolved. He took in his urine sample and they cultured it, said he had ecoli, and prescribed ceftin again. Instead of taking the ceftin, he switched back to macrobid, and the urine again was crystal clear and all symptoms resolved for about a week. Then another cold clammy sweat day, small amounts of sediment.
Apart from this issue, he is a healthy individual who remains active, works, and is able to do what he needs to do.
Mostly he is asymptomatic. Gets the occasional cold clammy sweats, which are a new thing. Yet his urologist continues to stress the goal of sterile urine, but this does not seem it obtainable, as he is sterile when on antibiotics for a time, and then quickly shows signs of bacteruia once the antibiotics stop or he remains on the prophylactic for more than a week. Ri have read about the nature of these infecting organisms, and how they can treat biofilms and hide and hide in intracellular spaces. I think that when he is on macrobid, his bladder is colonized with entero coccus resistant to it and free of e.coli, and when he is on bactrim, his bladder is colonized with E coli. I think that no matter what he does there is something that causes it to flare up every time the antibiotics are stopped. My main concern is if this is clinically significant or not. He has had those cold sweats three times for a few hours at abtime, usually when he gets out of bed, since September and this is disconcerting, but he has no other symptoms. Id like to know what is causing them. His skin, his bowel program, his energy and overall genitourinary function seem to be improved snice the IV antibiotics in September and discontinuing the foley. I do not have a complete copy of his lab results on hand, but on the phone I was told that the last urine sample two weeks ago grew over 100000 CFU of e. Coli, and had 5-10 white blood cells per field. There is little or no hematuria. there was sediment in his urine which resolved with macrobid. Because he feels like his urine looks better on macrobid than bactrim, he has elected to stay on it. The patient finds it hard to accept bacterial colonization because his urine was sterile for so long. My main concerns are this:
Wit those lab results in this type of situation, is this asymptomatic bacteria or is this a UTI?
Should his bladder be reassessed to see if there is still redness in the dome, or even biopsief, in light of the fact he used a foley for a long time and used to smoke?
Would he benefit from urodynamic testing?
Should he undergo further evaluation for stones, as in the past he formed a small stone in his kidney that spontaneously passed without intervention, according to his urologist. The renal scan came back negative for stones, but I know that sometimes they are hard to find and can be obscured by things like constipation. I was told that a prostate infection or a stone would mean the patient would only have recurrent infection with the same microbe. But if the majority of spinal cord injury patients have polymicrobial UTI, would an infected prostate or a stone not be polymicrobial as well?
Is there anything else you can recommend? I believe that his current urologist will endlessly culture and prescribe antibiotics and do no further evaluation uness prompted by the patient. He would like to know what to ask for. I feel that he should get a referral because the urologist himself has been fairly incompetent with any feedback, follow up, or general communication. I am also unsure how familiar he is with current best practice guidelines for neurogenic bladder. The patient was injured on the job and has workers compensation and can request a referral if his physiatrist feels it's warranted. Do you think he would benefit from going to the University of Alabama in Birmingham for an assessment of his urological situation? Or even just a general SCI check up? He has not had blood work done in ages, never had a cardiac exam, assessment for gallstones or anything else for that matter except a renal scan and periodic urine cultures.
This year of health problems and clammy sweats is a new phenomenon and he is concerned. Don you have any recommendations for who to see about urological issues at UAB? I know they literally wrote the book on some aspects of spinal cord management. There is a lack of SCI doctors here.
I know this is a very long post, but he is very upset and this is the one thing I felt I hadn't done. Thank you for your time.
(KDL), help me navigate these urological issues
lundi 28 décembre 2015
Vitaeris 320 for sale
I have a used Vitaeris 320 in excellent condition, a complete system chamber pump, oxygen concentrator, hoses, accessories with extra chamber sleeve, photos available.
Asking 12.5K email chrisontheroad@wavecable.com
Asking 12.5K email chrisontheroad@wavecable.com
Vitaeris 320 for sale
Anyone want to part with a TiLite 17 or 18 x 18?
I don't have exact measurements or requirements needed yet, but we are flexible. This will be used short term as a primary chair, and later as a backup chair. Dings and use are not as important as being in good workable order until we can sort out Medicare. Preference would be for a ZRA 2, TRA, Aero Z 2, but would also consider 2GX or Aero X. Once I have measurements, would also consider TR, TX, etc. Would need to be able to be shipped to Fort Worth Texas. If interested, please give full specs for the chair and/or serial number lookup.
Thanks. Trying to help an SCI friend in need.
Thanks. Trying to help an SCI friend in need.
Anyone want to part with a TiLite 17 or 18 x 18?
Travel and BM program
Hello all,
Not sure if I'm posting this in the right place but . . . here it goes.
Would love to do more traveling but feel so restricted. Restricted by my bowel movement program.(Tuesdays, Thursdays and Sundays) This schedule has been working out well for me for the last two years. However, I feel that if I get out of the comfort of my home and daily routine that my program will be so thrown off that I might be prone to have an accident or be in constant autonomic dysreflexia.
Is there a convenient way to keep up my program while traveling?
Is there a way for a strong c6 to get on a reg toilet?
I was hoping that you guys have ideas or experience in this area.
Not sure if I'm posting this in the right place but . . . here it goes.
Would love to do more traveling but feel so restricted. Restricted by my bowel movement program.(Tuesdays, Thursdays and Sundays) This schedule has been working out well for me for the last two years. However, I feel that if I get out of the comfort of my home and daily routine that my program will be so thrown off that I might be prone to have an accident or be in constant autonomic dysreflexia.
Is there a convenient way to keep up my program while traveling?
Is there a way for a strong c6 to get on a reg toilet?
I was hoping that you guys have ideas or experience in this area.
Travel and BM program
The Way It Is
In 1970, I made a minor error and wound up on the bottom of a gravel pit - not feeling my legs. Luckily, I was transported to Jersey Shore Medical Center where Dr Pietri performed a laminectomy at T-10. I spent several months (June through July) at JSMC then was ambulanced to Rusk Institute at 400 E 34th St, NYC, otherwise known as Institute for Rehab Medicine (IRM).
Anyway, on a hot summer day the ambulance guys pushed my wheeled stretcher into a hallway at IRM - where I thought they would cure my sci. Inadvertently, and unfortunately they parked me under a bronze plaque with an inscribed poem attributed (probably wrongly) to former IRM patient and NY Dodgers catcher Roy Campanella. It read as follows:
"I asked God for strength, that I might achieve. I was made weak, that I might learn humbly to obey. I asked for health, that I might do great things. I was given infirmity, that I might do better things. I asked for riches, that I might be happy. I was given poverty, that I might be wise. I asked for power, that I might have the praise of men. I was given weakness, that I might feel the need of God. I asked for all things, that I might enjoy life. I was given life that I might enjoy all things... I got nothing I asked for but everything I hoped for. Almost despite myself, my unspoken prayers were answered. I am among men, most richly blessed."
You can imagine the effect on a cynical, atheist Jersey guy who thought rehab meant cure. Anyway, during rehab I met numerous wonderful crips, dated 2 physical therapists, semi learned to ambulate on braces, decided to change careers and leave the oil business for voc rehab. Eventually, I met a fellow gimp who taught me how to jump curbs and other things. We married in Las Vegas in 1973. Despite myself and the adversity I have lived a happy life.
Anyway, on a hot summer day the ambulance guys pushed my wheeled stretcher into a hallway at IRM - where I thought they would cure my sci. Inadvertently, and unfortunately they parked me under a bronze plaque with an inscribed poem attributed (probably wrongly) to former IRM patient and NY Dodgers catcher Roy Campanella. It read as follows:
"I asked God for strength, that I might achieve. I was made weak, that I might learn humbly to obey. I asked for health, that I might do great things. I was given infirmity, that I might do better things. I asked for riches, that I might be happy. I was given poverty, that I might be wise. I asked for power, that I might have the praise of men. I was given weakness, that I might feel the need of God. I asked for all things, that I might enjoy life. I was given life that I might enjoy all things... I got nothing I asked for but everything I hoped for. Almost despite myself, my unspoken prayers were answered. I am among men, most richly blessed."
You can imagine the effect on a cynical, atheist Jersey guy who thought rehab meant cure. Anyway, during rehab I met numerous wonderful crips, dated 2 physical therapists, semi learned to ambulate on braces, decided to change careers and leave the oil business for voc rehab. Eventually, I met a fellow gimp who taught me how to jump curbs and other things. We married in Las Vegas in 1973. Despite myself and the adversity I have lived a happy life.
The Way It Is
For sale TiLite Aero Z
For sale TiLite Aero Z
15 x 16 seat
Great condition, no scratches, barely ever used.
Not original wheels they are from another TiLite chair.
Asking $1,200. Open to any offer.
Shipping from 43017 Dublin, Ohio
15 x 16 seat
Great condition, no scratches, barely ever used.
Not original wheels they are from another TiLite chair.
Asking $1,200. Open to any offer.
Shipping from 43017 Dublin, Ohio
For sale TiLite Aero Z
One click shutdown - windows 10
Annoyed at having to go through three clicks to shutdown Windows 10? Make your own one click button. Here is mine:
There are a few ways to do it. I used #2 on this page:
http://ift.tt/1ZxN8yM
The default desktop icon that is created looks like a book or something. Click "change the icon" and it will bring up the W10 basket of alternative icons. The red button I use is there. When you have the icon changed pin it to your taskbar. That works on one click. You can delete the desktop icon if you wish.
There are a few ways to do it. I used #2 on this page:
http://ift.tt/1ZxN8yM
The default desktop icon that is created looks like a book or something. Click "change the icon" and it will bring up the W10 basket of alternative icons. The red button I use is there. When you have the icon changed pin it to your taskbar. That works on one click. You can delete the desktop icon if you wish.
One click shutdown - windows 10
Skin issues with Lumex toilet seat
Has anyone else reported any issues with this cushion? I've been using it for over 4 years, and only recently started noticing skin scarring on one cheek. It could also possibly be because I tried using a squatty potty, which may have added too much pressure to one side.
http://ift.tt/1PsToTZ
I am thinking about adding another cushion on top to see if that would help, e.g. with:
http://ift.tt/1mLykP7
http://ift.tt/1PsToTZ
I am thinking about adding another cushion on top to see if that would help, e.g. with:
http://ift.tt/1mLykP7
Skin issues with Lumex toilet seat
Need a new Rehab shower commode chair
What kind do you all have? I've had a Everest and Jennings for years but it's falling apart. So I'm looking for suggestions. I need one that has swing away foot rest(but can also be removed), removable arm rest, and prefer a seat with an oval opening.
Thanks
Thanks
Need a new Rehab shower commode chair
dimanche 27 décembre 2015
fell doing transfer,bruise on butt
has anyone ever fell doing a transfer? i did landed on my foot plate/floor now have a bruise in my crack in between anus and tail bone..its not on my tail bone or any pressure points,but should i be worried? i do alot pressure reliefs..any thoughts?
fell doing transfer,bruise on butt
Core temperature software
does anyone have any ideas of the best free core temperature monitoring software
Core temperature software
samedi 26 décembre 2015
I'm going to be a Great Aunt again!
I was sick and stayed home through Christmas but sorry I missed this announcement in person! That's my nephew Greg - tall, lean, lanky like a Spence, his wife Shanna and lil Colton who turns two in April. Yay!
I'm going to be a Great Aunt again!
Can Anyone explain light deprivation to start early flower outdoor
doing my first outdoor this year and wanted to avoid september rain and have them finish by then!
When do you recommend light dep?
thanks
When do you recommend light dep?
thanks
Can Anyone explain light deprivation to start early flower outdoor
Foley at night: pros and cons
Hi! I would like to share my experience and at the same time read opinions about what I'm doing.
To provide a background, I can only hold around 300 milliliters of urine. I'm against Botox because I had a shot once and it needed anaesthesia and I really don't want to go through that twice a year.
The solution I engineered is the following:
The pros I find are:
The cons I find are:
Look forward to reading other people's opinions, as well as SCI-Nurse providing a professional opinion regarding this.
To provide a background, I can only hold around 300 milliliters of urine. I'm against Botox because I had a shot once and it needed anaesthesia and I really don't want to go through that twice a year.
The solution I engineered is the following:
- Not drinking much during the day
- Using a foley at night
- Drinking a lot of water before going to bed
The pros I find are:
- Not having many accidental voiding
- Not needing to wake up at night to cath
- No voiding at night
- Keeping a good level of hydration (this is a sensation, I have not done any study)
- No UTIs, against conventional wisdom
The cons I find are:
- A foley and a urine bag are not something a girl would like to see when going to bed
- I still void occasionally during the day, still forcing me to use diapers
Look forward to reading other people's opinions, as well as SCI-Nurse providing a professional opinion regarding this.
Foley at night: pros and cons
peepee problems
I had a bunch of heart tests on the 23rd. the potts, (postural orthostatic tachycardia) has turned into something else that is constant.
I ran out of good days some months ago, and can no longer stand more than a few minutes without crazy heart and extreme sweating.
buckets of sweat.
crazy heart wakes me up all night long. the sweating at night is incredible.
of coarse menopause is a thing to consider. But this has been more debilitating than my sci has been all these years.
I cannot shop, go fishing, walk my incredible dog, ride my trike, play my musical instruments, or clean my apartment. I have stopped driving again, because it would be irresponsible to consider it safe if I cannot know when or why the thing will happen.
when I go to the Dr now I see her eyes almost glaze over when I tell her its just getting worse, I feel like Im going to die.
she wants to put my back on the pain meds, would like me to take clonazapam "to calm me down" and prescribed an antidepressant.
I took one pill, and I thought it was going to kill me. my heart was twerking and felt like it was flopping like a flat tire.
the flat tire feeling happens as my heart begins to slow after an episode. It did that for several more days.
I let her know that the antidepressant did that, and no one believed it until they looked up side affects and it was confirmed as a possible side affect. I took this antidepressant after my accident. It did not have any adverse affects, and in fact worked well at a low dose.
I told her im only feeling anxiety when Im going to the dr. I don't think they understand how bad this is.
she did a fairly thorough physical exam. she seemed hasty and a little bored while she listened to my heart. it thumped and began to flop while I was laying there, and then my entire body was soaked with sweat.
I could tell she was no longer so bored as she tried to listen closer. the thing stopped though.
it was enough though to get some heart tests, started with the halter monitor for 24 hours.
my GP said now make sure you take a shower, and vacuum, and all the things that cause the thing.
the first thing the person putting on the monitor said is you are not allowed to take a shower, or vacuum or touch things plugged an electrical socket. all the things that would guarantee an episode were not allowed because it would damage the device or alter the test.
as it is, the thing happened all night, and up until an hour before the tests was over.
My GP said it was nothing much, and I about died. im sure she saw my shock.
then she said well there are skipped beats, and it shows very slow beats followed by very fast beats.
its nothing though.
I couldn't not get teary eyed.
my weight has steadily increased while my ability to eat has not. I look pregnant, and my feet and hands are obviously swollen with fluid.
Its extremely painful to stand. my bones hurt, to stand. my feet are incredibly painful. its not nerve pain, its real pain.
both wrists subluxate, as do the ankles knee's and first finger joints. the GP is puzzled by this but agree's that is what it looks like. that fluid is pushing the small bones apart. no need for an ex ray, she can push my wrist bones back and forth with her fingers.
the swelling is what got me the heart tests.
one day an eye swelled up, a few days later it went down and the other eye swelled up.
I have a steady cough that has no reason. one day I started coughing up blood. not much, it stopped after few days, but not the cough. it happens when the heart goes nuts.
On the day I got those heart tests, they made me drink a lot because the person who put in the Iv said I was dehydrated. I told him Iv been drinking gatoraid for days like the dr ordered.
on that day my cath volumes plumeted to almost nothing. they said drink more gatoraid. I told them something strange is going on with my eyes. I can see all the veins on the inside of my eyes, and see the fluid move when I turn my head, and an intense flash in my eyes. I asked if someone was taking a picture because the flash was that real. they never heard of such a thing.
by christmas eve, I had gone to 6-8 hour caths just to have something come out.
yesterday only two caths ten hours between. I can tell its affecting my brain. I can type what im thinking, but cant get all my words from my brain to my mouth. if I try to talk about something, its like I have ADD. reaching for words is like reaching to the top shelf of a dark closet. a shelf too high for me to reach.
last night I noticed my fingertips were bluish. my lips have a dark look, and when the fingers get blue so do my lips. my palms get red, fingers get white, tip get bluish. if I take many deep breaths the bluishness goes away.
I asked roomie if he saw it too and he did.
this morning I had a respectable pee. it seemed to go on forever, but it has no color to it at all. 640ml
two hours later, same thing. it's 600ml of clearness.
is it clear because Im so blown up? or because stuff isn't being filtered out? I do feel its easier to breathe, and I can tell I will need to cath again after only an hour. is it a stone?
my kidney function tests have been normal, and though I feel kidney pain. there is no UTI.
the sweating is not as bad as it has been for weeks and weeks, and my heart feels a bit less crazy, so I don't know if my heart is making my kidneys crap our or if my kidneys are making my heart go nuts.
I know only that it has defeated me, and ruined my life.
I ran out of good days some months ago, and can no longer stand more than a few minutes without crazy heart and extreme sweating.
buckets of sweat.
crazy heart wakes me up all night long. the sweating at night is incredible.
of coarse menopause is a thing to consider. But this has been more debilitating than my sci has been all these years.
I cannot shop, go fishing, walk my incredible dog, ride my trike, play my musical instruments, or clean my apartment. I have stopped driving again, because it would be irresponsible to consider it safe if I cannot know when or why the thing will happen.
when I go to the Dr now I see her eyes almost glaze over when I tell her its just getting worse, I feel like Im going to die.
she wants to put my back on the pain meds, would like me to take clonazapam "to calm me down" and prescribed an antidepressant.
I took one pill, and I thought it was going to kill me. my heart was twerking and felt like it was flopping like a flat tire.
the flat tire feeling happens as my heart begins to slow after an episode. It did that for several more days.
I let her know that the antidepressant did that, and no one believed it until they looked up side affects and it was confirmed as a possible side affect. I took this antidepressant after my accident. It did not have any adverse affects, and in fact worked well at a low dose.
I told her im only feeling anxiety when Im going to the dr. I don't think they understand how bad this is.
she did a fairly thorough physical exam. she seemed hasty and a little bored while she listened to my heart. it thumped and began to flop while I was laying there, and then my entire body was soaked with sweat.
I could tell she was no longer so bored as she tried to listen closer. the thing stopped though.
it was enough though to get some heart tests, started with the halter monitor for 24 hours.
my GP said now make sure you take a shower, and vacuum, and all the things that cause the thing.
the first thing the person putting on the monitor said is you are not allowed to take a shower, or vacuum or touch things plugged an electrical socket. all the things that would guarantee an episode were not allowed because it would damage the device or alter the test.
as it is, the thing happened all night, and up until an hour before the tests was over.
My GP said it was nothing much, and I about died. im sure she saw my shock.
then she said well there are skipped beats, and it shows very slow beats followed by very fast beats.
its nothing though.
I couldn't not get teary eyed.
my weight has steadily increased while my ability to eat has not. I look pregnant, and my feet and hands are obviously swollen with fluid.
Its extremely painful to stand. my bones hurt, to stand. my feet are incredibly painful. its not nerve pain, its real pain.
both wrists subluxate, as do the ankles knee's and first finger joints. the GP is puzzled by this but agree's that is what it looks like. that fluid is pushing the small bones apart. no need for an ex ray, she can push my wrist bones back and forth with her fingers.
the swelling is what got me the heart tests.
one day an eye swelled up, a few days later it went down and the other eye swelled up.
I have a steady cough that has no reason. one day I started coughing up blood. not much, it stopped after few days, but not the cough. it happens when the heart goes nuts.
On the day I got those heart tests, they made me drink a lot because the person who put in the Iv said I was dehydrated. I told him Iv been drinking gatoraid for days like the dr ordered.
on that day my cath volumes plumeted to almost nothing. they said drink more gatoraid. I told them something strange is going on with my eyes. I can see all the veins on the inside of my eyes, and see the fluid move when I turn my head, and an intense flash in my eyes. I asked if someone was taking a picture because the flash was that real. they never heard of such a thing.
by christmas eve, I had gone to 6-8 hour caths just to have something come out.
yesterday only two caths ten hours between. I can tell its affecting my brain. I can type what im thinking, but cant get all my words from my brain to my mouth. if I try to talk about something, its like I have ADD. reaching for words is like reaching to the top shelf of a dark closet. a shelf too high for me to reach.
last night I noticed my fingertips were bluish. my lips have a dark look, and when the fingers get blue so do my lips. my palms get red, fingers get white, tip get bluish. if I take many deep breaths the bluishness goes away.
I asked roomie if he saw it too and he did.
this morning I had a respectable pee. it seemed to go on forever, but it has no color to it at all. 640ml
two hours later, same thing. it's 600ml of clearness.
is it clear because Im so blown up? or because stuff isn't being filtered out? I do feel its easier to breathe, and I can tell I will need to cath again after only an hour. is it a stone?
my kidney function tests have been normal, and though I feel kidney pain. there is no UTI.
the sweating is not as bad as it has been for weeks and weeks, and my heart feels a bit less crazy, so I don't know if my heart is making my kidneys crap our or if my kidneys are making my heart go nuts.
I know only that it has defeated me, and ruined my life.
peepee problems
How to teach Dragon a name?
I forget now ? ? how do you teachDragon what to write when it hears a name: for example, to write ?Lynda? whenit hears Linda.
How to teach Dragon a name?
vendredi 25 décembre 2015
Falling in Braces
Did you ever learn from your physical therapist in outpatient rehab to fall in braces as safely as possible? Many of us here ambulate around our homes ALL the time. I only imagine many of us fall from time to time. I have.... Thanks to God I haven't gotten hurt yet.
Why not teach brace walking in a safe way?
Why not teach brace walking in a safe way?
Falling in Braces
Merry Christmas to All
Just wanted to wish EVERYONE a Merry Christmas !!! You folks are all awesome and a great community. Happy holidays and peace to all.
Cheers,
Daniel
Cheers,
Daniel
Merry Christmas to All
jeudi 24 décembre 2015
FES STIM BIKE RT 300 For Sale
FES STIM BIKE RT 300
I have a brand new rt 300 that has been used less than ten times. I am an L 1 injury and it will not work for my situation. I can send pictures. I paid around 14 to 15k for the 300. Please make me a fair offer and I may accept. Email me at rpowell@srlife.net
I have a brand new rt 300 that has been used less than ten times. I am an L 1 injury and it will not work for my situation. I can send pictures. I paid around 14 to 15k for the 300. Please make me a fair offer and I may accept. Email me at rpowell@srlife.net
FES STIM BIKE RT 300 For Sale
Can anyone help with a Ft. Worth TX DME?
This is a very long story. I am trying to help a very old friend who is in Ft. Worth Texas to get the equipment that he needs. For a certain amount of time I tried to get him involved in this forum with no success. It is now a rather urgent situation and I am trying to help him and his family, who have POA to help him.
I think I know more about his situations than many others, and he has very limited professional support, and is now in a nursing home. He is experiencing cognitive difficulties and I may have a hard time getting more information from him. From when he could tell me earlier, I think I understand his core needs, and they have not changed much, and if anything have improved (very good, but strange!).
Who would you recommend for complex rehab technology in the Ft. Worth area, preferably in the north? He has had dealings with Landmark Healthcare when he was trying to get a power chair. For whatever reasons, that did not happen, but I suspect that had to do with his low motivation and understanding.
From everything I hear, he and the family would like to go with a manual chair because he is doing very well with getting around in a depot chair (unlike previously). I would like to suggest a rigid ultra-light chair with a power add-on. He is early 60s, c5/c6, but has torn rotator cuffs and cognitive issues. For cognitive reasons, I think a ZX-1 may suit him better than something like a SmartDrive. I would like to hear input.
I also have questions about Medicare in Texas. We do not think he has supplemental insurance, and do not know what might be covered. He may also be moving closer to another family member in another state when possible, and I don't know what the rules are for that with equipment -- how long is it before the equipment can be taken out of state?
Thanks for any information you can provide. I considered putting this in CareCure Chapters, but they seem to be very poorly attended.
I think I know more about his situations than many others, and he has very limited professional support, and is now in a nursing home. He is experiencing cognitive difficulties and I may have a hard time getting more information from him. From when he could tell me earlier, I think I understand his core needs, and they have not changed much, and if anything have improved (very good, but strange!).
Who would you recommend for complex rehab technology in the Ft. Worth area, preferably in the north? He has had dealings with Landmark Healthcare when he was trying to get a power chair. For whatever reasons, that did not happen, but I suspect that had to do with his low motivation and understanding.
From everything I hear, he and the family would like to go with a manual chair because he is doing very well with getting around in a depot chair (unlike previously). I would like to suggest a rigid ultra-light chair with a power add-on. He is early 60s, c5/c6, but has torn rotator cuffs and cognitive issues. For cognitive reasons, I think a ZX-1 may suit him better than something like a SmartDrive. I would like to hear input.
I also have questions about Medicare in Texas. We do not think he has supplemental insurance, and do not know what might be covered. He may also be moving closer to another family member in another state when possible, and I don't know what the rules are for that with equipment -- how long is it before the equipment can be taken out of state?
Thanks for any information you can provide. I considered putting this in CareCure Chapters, but they seem to be very poorly attended.
Can anyone help with a Ft. Worth TX DME?
Rehabilitation process question
Hi ^^
What would be the rehabilitation process for a minor with a SCI in the T10 area?
If they had no close family, would they have to stay at the hospital? If so, what ward would they stay in?
Thank you for your time.
What would be the rehabilitation process for a minor with a SCI in the T10 area?
If they had no close family, would they have to stay at the hospital? If so, what ward would they stay in?
Thank you for your time.
Rehabilitation process question
mercredi 23 décembre 2015
Was she the PCA from hell?
Hampton police are investigating after a woman was found shot to death inside a townhome Thursday night. Police say a man in a wheelchair for whom the woman supposedly provided care is a suspect in the incident.
It was around 6:20pm when police were called to the home in the 100 block of Martha Lee Drive.
There officers found the 41-year-old female suffering from several gunshot wounds to her upper torso. Medics pronounced her dead at the scene.
The 42-year-old male resident - who uses a wheelchair - was transported to Hampton Police Division Headquarters for additional questioning.
One neighbor expressed shock at the shooting.
"I'm very shocked," Jacqueline Drake told WAVY News 10. "I can't imagine. The young lady we see her in and out of the complex all the time."
Police believe an argument between the woman and the man led to the shooting.
While police are not sure of the relationship between the two, Drake tells WAVY News 10 the man is confined to a wheelchair and the woman is his caretaker.
"She comes in and does maybe cleaning, attend to his needs, things that need to have done in his home," said Drake. "We see her taking garbage out for him, the things you would normally do to provide health care services to them and companion services."
Police are not releasing the name of the woman until they notify her next of kin.
Officials have not released the identity of the suspect.
It was around 6:20pm when police were called to the home in the 100 block of Martha Lee Drive.
There officers found the 41-year-old female suffering from several gunshot wounds to her upper torso. Medics pronounced her dead at the scene.
The 42-year-old male resident - who uses a wheelchair - was transported to Hampton Police Division Headquarters for additional questioning.
One neighbor expressed shock at the shooting.
"I'm very shocked," Jacqueline Drake told WAVY News 10. "I can't imagine. The young lady we see her in and out of the complex all the time."
Police believe an argument between the woman and the man led to the shooting.
While police are not sure of the relationship between the two, Drake tells WAVY News 10 the man is confined to a wheelchair and the woman is his caretaker.
"She comes in and does maybe cleaning, attend to his needs, things that need to have done in his home," said Drake. "We see her taking garbage out for him, the things you would normally do to provide health care services to them and companion services."
Police are not releasing the name of the woman until they notify her next of kin.
Officials have not released the identity of the suspect.
Was she the PCA from hell?
dispensary worker before jan 2013
my colleagues and i are looking for someone who has worked at a dispensary before jan 2013. must have proof. w2 or pay stubs. will pay
dispensary worker before jan 2013
35 years
How time flies and drags at the same time. That first chair 35 years ago was the basic standard 18" wide E&J tank with projection hand-rims that had like a brake handle cover on them. Those things would fall off, wear out, get lost.... That thing was a pain to drag in and out of the back seat behind me. 35 years later I mean a literal, physical pain as I set in a power chair shoulders that are shot. All those that had to be learned over that I had not given a second thought to before. Relearning how to eat with the silverware stuck into a utensil holder was a time consuming and sometimes an extremely messy process. I sure had a lot of time on my hands to spend working on things. Hurrying to get dressed and put a shirt on using a button hook could not be done in a rush or the buttons were not even close to going into the intended button hole. Then there was the time my young nephew kicked the drain off the bottom of my leg bag while climbing up into my lap. It was a very good thing we were outside. There were extremely hard times along the way before it became apparent I need to develop a warped sense of humor. There are so many ways to fall out of a chair. Thank God for seat dump and the way it helps with sitting balance. And I have often wondered if my first chairs had anti tippers on the back how many more brain cells I would have now. There were some ramps that were just too steep for me to handle safely without flipping over backwards. Am I any wiser now? Who knows. My sense of humor is certainly more warped now.
35 years
FYI: TiLite Metric Conversion
I saw this on TiLite's Facebook page: TiLite
Starting on May 1st, 2016 TiLite will convert to Metric hardware. Here are a few things to look out for along with the conversion!
New part numbers.
Imperial replacement parts will be kept on hand for 5 years.
Changes will not affect chair measurements, tires, casters, armrests, footrest hangers, bearings, and upholstery.
---------------------
Overall I think this is a good thing, but I am not sure that 5 years for replacement parts will be long enough.
Starting on May 1st, 2016 TiLite will convert to Metric hardware. Here are a few things to look out for along with the conversion!
New part numbers.
Imperial replacement parts will be kept on hand for 5 years.
Changes will not affect chair measurements, tires, casters, armrests, footrest hangers, bearings, and upholstery.
---------------------
Overall I think this is a good thing, but I am not sure that 5 years for replacement parts will be long enough.
FYI: TiLite Metric Conversion
StemCells, Inc. Announces Strategic Realignment
http://ift.tt/1IqvXew
Prioritizes Spinal Cord Injury Program to Reduce Cash Needs and Expedite Progress to Pivotal Data
NEWARK, Calif., Dec. 23, 2015 (GLOBE NEWSWIRE) -- StemCells, Inc. (STEM), a world leader in the research and development of cell-based therapeutics for the treatment of disorders of the central nervous system, today announced a strategic realignment to fully focus the Company?s resources on its proprietary HuCNS-SC? platform technology for the treatment of chronic spinal cord injury (SCI).
Evidence of efficacy from the Company?s ongoing clinical trials in chronic SCI offers therapeutic promise to restore lost function previously considered unrecoverable. StemCells recently reported a pattern of improvements in both strength and motor function, six months post-transplant of its proprietary HuCNS-SC cells, in the first cohort of its Phase II Pathway? Study in cervical spinal cord injury. These interim findings are especially compelling given that all patients were treated between 10 to 23 months post-injury. Spontaneous motor recovery is not expected in SCI at this late stage after injury. Moreover, the emerging Phase II data are consistent with the evolution of positive outcomes seen in the Company?s previous Phase I/II study in thoracic SCI, in which measurable sensory gains were reported in the majority of patients, and two of the seven patients enrolled with complete injuries (AIS A) converted to incomplete injuries (AIS B).
?The decision to prioritize our spinal cord injury program required some difficult choices, including the suspension of the Company?s Phase II Radiant? Study in geographic atrophy of age-related macular degeneration (GA-AMD) while we seek a partner to fund continued development in retinal disorders,? said StemCells? CEO Martin McGlynn. ?Given the strength of our clinical findings for the safety and preliminary efficacy of our HuCNS-SC platform technology in treating chronic spinal cord injury, we have decided that now is the time to narrow our focus. Our overall mission remains the same: to realize the full potential of cell-based therapeutics as a one-time intervention yielding a long-term benefit for millions of patients affected by intractable diseases and disorders of the central nervous system. While our programs addressing neurodegenerative diseases and retinal disorders have also shown great promise, we have concluded that the most effective way to accomplish our objective is by concentrating our limited corporate resources on the program with which we are making the most rapid progress ? chronic spinal cord injury.?
The plan announced today, which is estimated to yield a cost reduction of approximately $20 million over the next two years, will allow the Company to expedite completion of its ongoing Phase II Pathway Study and commencement of a pivotal Phase III clinical trial in chronic spinal cord injury.
Key elements of the plan include:
Immediate suspension of the Company?s Phase II Radiant Study in GA-AMD, which entails curtailing further patient enrollment and service agreements related to the AMD program.
A workforce reduction of approximately 25%, which is planned to be completed by January 31, 2016. The Company estimates it will incur restructuring charges of approximately $400,000 in Q1 2016 in connection with one-time employee termination costs, including severance and other benefits.
Ongoing efforts to monetize certain of the Company?s technology assets, which may include partnerships, strategic alliances, out-licenses of non-core intellectual property, and the pursuit of both non-dilutive and creative product-specific financing alternatives.
These measures will enable the Company to:
Reduce cash needs and reliance on capital markets.
Expedite enrollment in the ongoing Phase II Pathway Study in spinal cord injury, facilitating completion in 2016.
Enhance process development activities supporting commercial scale production of HuCNS-SC cells before the initiation of a Phase III study in SCI.
?We have sound reason for high confidence in our SCI program,? McGlynn noted. ?We believe this singular focus on chronic spinal cord injury is the right course of action for our Company, as it expedites the opportunity to demonstrate clinical proof-of-concept for our lead product candidate, thereby best serving the patients who would benefit, while creating substantial long-term value for our stockholders as early as possible.
?We wish to thank the patients and clinicians who have participated in our clinical studies to date, as well as the many dedicated colleagues who have been instrumental in achieving our successes thus far. Our hope is that by focusing now on our most advanced program, we will be paving the way to further address other disorders in the future.?
About the StemCells, Inc. Spinal Cord Injury Program
The Phase II Pathway Study, titled ?Study of Human Central Nervous System (CNS) Stem Cell Transplantation in Cervical Spinal Cord Injury,? is evaluating the safety and efficacy of transplanting the Company?s proprietary human neural stem cells (HuCNS-SC cells) into patients with traumatic injury in the cervical region of the spinal cord. Patients eligible for the Pathway Study have complete loss of motor control below the level of injury, the most severe degree of SCI as defined by the American Spinal Injury Association Impairment Scale (AIS). Clinicians are using both International Standards for Neurological Classification of Spinal Cord Injury (ISNCSCI) and Graded Assessment of Strength Sensibility and Prehension (GRASSP) measures to establish a pre-transplant baseline for each patient and to assess post-transplant progress. Conducted as a randomized, controlled, single-blinded study, the trial will measure efficacy by assessing motor function according to the ISNCSCI. The primary efficacy outcome will focus on change in upper extremity strength as measured in the hands, arms and shoulders. The trial will enroll approximately 52 subjects and follow the patients for 12 months post-transplant.
Information about the Company?s spinal cord injury program can be found on the StemCells, Inc. website at: http://ift.tt/1JnY4d5
Information on the Company?s pre-clinical spinal cord injury research, along with an animation on the science of HuCNS-SC cells for the treatment of spinal cord injuries, can be found at: http://ift.tt/1PkxfXO
Information for patients interested in participating in the Pathway Study is available at: http://ift.tt/1s8U1s7
Additional information about the clinical trial is available at: http://ift.tt/1IqvZmJ
About HuCNS-SC Cells
StemCells, Inc. has demonstrated human safety data from completed and ongoing clinical studies in which its proprietary HuCNS-SC cells have been transplanted directly into all three components of the central nervous system: the brain, the spinal cord and the eye. StemCells, Inc. clinicians and scientists believe that HuCNS-SC cells may have broad therapeutic application for many diseases and disorders of the CNS. Because the transplanted HuCNS-SC cells have been shown to engraft and survive long-term, there is the possibility of a durable clinical effect following a single transplantation. The HuCNS-SC platform technology is a highly purified composition of human neural stem cells (tissue-derived or ?adult? stem cells). Manufactured under cGMP standards, the Company?s HuCNS-SC cells are purified, expanded in culture, cryopreserved, and then stored as banks of cells, ready to be made into individual patient doses when needed.
About StemCells, Inc.
StemCells, Inc. is currently engaged in clinical development of its HuCNS-SC platform technology (purified human neural stem cells) as a potential treatment for chronic spinal cord injury (SCI). The Company's Pathway Study, a Phase II proof-of-concept trial in cervical SCI is actively enrolling at twelve sites. Six-month interim data for the first cohort of the Pathway Study showed the first-ever clinical evidence of a treatment effect improving both muscle strength and motor function following cellular transplant in spinal cord injury. Top-line data from the Company's Phase I/II clinical trial in thoracic SCI showed measurable gains involving multiple sensory modalities and segments, including the conversion of two of seven patients enrolled in the study with complete injuries to incomplete injuries, post-transplant. The Company has also completed its Phase I/II clinical trial in geographic atrophy dry age related macular degeneration. Top-line results from this study show a positive safety profile and favorable preliminary efficacy data. In a Phase I clinical trial in Pelizaeus-Merzbacher disease (PMD), a fatal myelination disorder in children, the Company showed preliminary evidence of progressive and durable donor-derived myelination by MRI.
Further information about StemCells, Inc. is available at http://ift.tt/1fjETjw.
Prioritizes Spinal Cord Injury Program to Reduce Cash Needs and Expedite Progress to Pivotal Data
NEWARK, Calif., Dec. 23, 2015 (GLOBE NEWSWIRE) -- StemCells, Inc. (STEM), a world leader in the research and development of cell-based therapeutics for the treatment of disorders of the central nervous system, today announced a strategic realignment to fully focus the Company?s resources on its proprietary HuCNS-SC? platform technology for the treatment of chronic spinal cord injury (SCI).
Evidence of efficacy from the Company?s ongoing clinical trials in chronic SCI offers therapeutic promise to restore lost function previously considered unrecoverable. StemCells recently reported a pattern of improvements in both strength and motor function, six months post-transplant of its proprietary HuCNS-SC cells, in the first cohort of its Phase II Pathway? Study in cervical spinal cord injury. These interim findings are especially compelling given that all patients were treated between 10 to 23 months post-injury. Spontaneous motor recovery is not expected in SCI at this late stage after injury. Moreover, the emerging Phase II data are consistent with the evolution of positive outcomes seen in the Company?s previous Phase I/II study in thoracic SCI, in which measurable sensory gains were reported in the majority of patients, and two of the seven patients enrolled with complete injuries (AIS A) converted to incomplete injuries (AIS B).
?The decision to prioritize our spinal cord injury program required some difficult choices, including the suspension of the Company?s Phase II Radiant? Study in geographic atrophy of age-related macular degeneration (GA-AMD) while we seek a partner to fund continued development in retinal disorders,? said StemCells? CEO Martin McGlynn. ?Given the strength of our clinical findings for the safety and preliminary efficacy of our HuCNS-SC platform technology in treating chronic spinal cord injury, we have decided that now is the time to narrow our focus. Our overall mission remains the same: to realize the full potential of cell-based therapeutics as a one-time intervention yielding a long-term benefit for millions of patients affected by intractable diseases and disorders of the central nervous system. While our programs addressing neurodegenerative diseases and retinal disorders have also shown great promise, we have concluded that the most effective way to accomplish our objective is by concentrating our limited corporate resources on the program with which we are making the most rapid progress ? chronic spinal cord injury.?
The plan announced today, which is estimated to yield a cost reduction of approximately $20 million over the next two years, will allow the Company to expedite completion of its ongoing Phase II Pathway Study and commencement of a pivotal Phase III clinical trial in chronic spinal cord injury.
Key elements of the plan include:
Immediate suspension of the Company?s Phase II Radiant Study in GA-AMD, which entails curtailing further patient enrollment and service agreements related to the AMD program.
A workforce reduction of approximately 25%, which is planned to be completed by January 31, 2016. The Company estimates it will incur restructuring charges of approximately $400,000 in Q1 2016 in connection with one-time employee termination costs, including severance and other benefits.
Ongoing efforts to monetize certain of the Company?s technology assets, which may include partnerships, strategic alliances, out-licenses of non-core intellectual property, and the pursuit of both non-dilutive and creative product-specific financing alternatives.
These measures will enable the Company to:
Reduce cash needs and reliance on capital markets.
Expedite enrollment in the ongoing Phase II Pathway Study in spinal cord injury, facilitating completion in 2016.
Enhance process development activities supporting commercial scale production of HuCNS-SC cells before the initiation of a Phase III study in SCI.
?We have sound reason for high confidence in our SCI program,? McGlynn noted. ?We believe this singular focus on chronic spinal cord injury is the right course of action for our Company, as it expedites the opportunity to demonstrate clinical proof-of-concept for our lead product candidate, thereby best serving the patients who would benefit, while creating substantial long-term value for our stockholders as early as possible.
?We wish to thank the patients and clinicians who have participated in our clinical studies to date, as well as the many dedicated colleagues who have been instrumental in achieving our successes thus far. Our hope is that by focusing now on our most advanced program, we will be paving the way to further address other disorders in the future.?
About the StemCells, Inc. Spinal Cord Injury Program
The Phase II Pathway Study, titled ?Study of Human Central Nervous System (CNS) Stem Cell Transplantation in Cervical Spinal Cord Injury,? is evaluating the safety and efficacy of transplanting the Company?s proprietary human neural stem cells (HuCNS-SC cells) into patients with traumatic injury in the cervical region of the spinal cord. Patients eligible for the Pathway Study have complete loss of motor control below the level of injury, the most severe degree of SCI as defined by the American Spinal Injury Association Impairment Scale (AIS). Clinicians are using both International Standards for Neurological Classification of Spinal Cord Injury (ISNCSCI) and Graded Assessment of Strength Sensibility and Prehension (GRASSP) measures to establish a pre-transplant baseline for each patient and to assess post-transplant progress. Conducted as a randomized, controlled, single-blinded study, the trial will measure efficacy by assessing motor function according to the ISNCSCI. The primary efficacy outcome will focus on change in upper extremity strength as measured in the hands, arms and shoulders. The trial will enroll approximately 52 subjects and follow the patients for 12 months post-transplant.
Information about the Company?s spinal cord injury program can be found on the StemCells, Inc. website at: http://ift.tt/1JnY4d5
Information on the Company?s pre-clinical spinal cord injury research, along with an animation on the science of HuCNS-SC cells for the treatment of spinal cord injuries, can be found at: http://ift.tt/1PkxfXO
Information for patients interested in participating in the Pathway Study is available at: http://ift.tt/1s8U1s7
Additional information about the clinical trial is available at: http://ift.tt/1IqvZmJ
About HuCNS-SC Cells
StemCells, Inc. has demonstrated human safety data from completed and ongoing clinical studies in which its proprietary HuCNS-SC cells have been transplanted directly into all three components of the central nervous system: the brain, the spinal cord and the eye. StemCells, Inc. clinicians and scientists believe that HuCNS-SC cells may have broad therapeutic application for many diseases and disorders of the CNS. Because the transplanted HuCNS-SC cells have been shown to engraft and survive long-term, there is the possibility of a durable clinical effect following a single transplantation. The HuCNS-SC platform technology is a highly purified composition of human neural stem cells (tissue-derived or ?adult? stem cells). Manufactured under cGMP standards, the Company?s HuCNS-SC cells are purified, expanded in culture, cryopreserved, and then stored as banks of cells, ready to be made into individual patient doses when needed.
About StemCells, Inc.
StemCells, Inc. is currently engaged in clinical development of its HuCNS-SC platform technology (purified human neural stem cells) as a potential treatment for chronic spinal cord injury (SCI). The Company's Pathway Study, a Phase II proof-of-concept trial in cervical SCI is actively enrolling at twelve sites. Six-month interim data for the first cohort of the Pathway Study showed the first-ever clinical evidence of a treatment effect improving both muscle strength and motor function following cellular transplant in spinal cord injury. Top-line data from the Company's Phase I/II clinical trial in thoracic SCI showed measurable gains involving multiple sensory modalities and segments, including the conversion of two of seven patients enrolled in the study with complete injuries to incomplete injuries, post-transplant. The Company has also completed its Phase I/II clinical trial in geographic atrophy dry age related macular degeneration. Top-line results from this study show a positive safety profile and favorable preliminary efficacy data. In a Phase I clinical trial in Pelizaeus-Merzbacher disease (PMD), a fatal myelination disorder in children, the Company showed preliminary evidence of progressive and durable donor-derived myelination by MRI.
Further information about StemCells, Inc. is available at http://ift.tt/1fjETjw.
StemCells, Inc. Announces Strategic Realignment
Wtt: ice wax or rosin for Xbox one
Hey guys have a lot of ice wax and rosin and I'm looking so trade some for a Xbox one for my little girl for xmas! Let me know thanks
Wtt: ice wax or rosin for Xbox one
mardi 22 décembre 2015
Replace caster wheels with omnidirectional ball wheels
You know those spheres, kind of like ball bearings, that can roll in any direction?
Is there any way to replace the caster wheels in a wheelchair with such ball-wheels? Where would you get ones of appropriate size?
Is there any way to replace the caster wheels in a wheelchair with such ball-wheels? Where would you get ones of appropriate size?
Replace caster wheels with omnidirectional ball wheels
Demyelination and remyelination in spinal cord injury
"Since the discovery in the 1960s that remyelination can occur in the damaged central nervous system (CNS) (Bunge et al. 1961), there has been much progress in understanding the cellular and molecular biology of oligodendroglia and the factors that regulate their propagation, migration, differentiation, maturation, and ability to myelinate nerve axons. More recently, greater understanding of disease states and the role of oligodendrocytes in remyelination have sparked tremendous interest in this once obscure field. Although the explosion of information is being hampered by adherence to commonly held beliefs based on empirical evidence, novel molecular and cellular tools are allowing scientists to address age-old assumptions. It is now recognized that, as well as promoting salutatory conduction along axons, oligodendroglia are important near-term clinical targets for restoring function after CNS injury, particularly spinal cord injury. Thus, remyelination appears to be one of the most feasible restoration strategies. This review focuses on concepts that are important for developing strategies of repair. The brightest young scientists will be attracted into this exciting field by its near-term potential for human application." (http://ift.tt/1TfLv55).
Multiple sclerosis (MS) is an autoimmune demyelinating disease. Would drugs/supplements used for MS therefore be theoretically helpful for facilitating spinal cord injury recovery? I'm talking about substances that enhance remyelination.
Multiple sclerosis (MS) is an autoimmune demyelinating disease. Would drugs/supplements used for MS therefore be theoretically helpful for facilitating spinal cord injury recovery? I'm talking about substances that enhance remyelination.
Demyelination and remyelination in spinal cord injury
2007 Dodge Caravan SE VMI Summit Wheelchair Conversion Van For Sale
Hello I'm trying to help a relative sell a wheelchair van after the passing of her husband. Someone told me about this forum. The van is in the Orlando/Daytona Beach Florida area. Good condition. 73,000 miles. Power folding ramp, lowered floor, in-floor safety restraints, removable drivers seat for in-chair or transfer operation. Priced to sell at $15,000. Please share with anyone who may have a need. http://ift.tt/1lEWObR Thank you
2007 Dodge Caravan SE VMI Summit Wheelchair Conversion Van For Sale
Donk standing frame (adapted ladder)
I posted about this creation maybe 10 years ago, but thought I'd post again as I recently installed my 'donk' kit to my Easystand 5000 so I can scrape and paint a ceiling.
Anyway, it is an Easystand 5000 with the mobile option. The wheelchair wheel install requires nothing, uses the existing bolts for the standing frame front wheels, which are perfect size for wheelchair wheel bearings. The rear casters are raised via 2 studs and 4 coupling nuts. You could probably just use 2 coupling nuts to attach the casters to the studs and then thread the studs into the standing frame itself, but I use the extra 2 nuts to lock it down into the frame just because I had them on hand.
Hope this gives you guys an idea on how to make a adapted ladder of sorts. This gives me enough height to reach the ceiling.
Anyway, it is an Easystand 5000 with the mobile option. The wheelchair wheel install requires nothing, uses the existing bolts for the standing frame front wheels, which are perfect size for wheelchair wheel bearings. The rear casters are raised via 2 studs and 4 coupling nuts. You could probably just use 2 coupling nuts to attach the casters to the studs and then thread the studs into the standing frame itself, but I use the extra 2 nuts to lock it down into the frame just because I had them on hand.
Hope this gives you guys an idea on how to make a adapted ladder of sorts. This gives me enough height to reach the ceiling.
Donk standing frame (adapted ladder)
My Obamacare Ordeal!
So this year I thought I would give Obamacare a try. I am tired of paying 800.00 a month to have a low deductible. So I went to a Obamacare help site. They found me a Humana hmo with a 1500.00 deductible for 591.00 a month. I have to pay full price because of income. No problem with that as long as I get good service and treatment. So the agent that sold me the policy said my pcp and urologist is on the list. They sent me a letter that said I can't use my pcp and assign me someone else. But I can go on their site and request someone else from their list and they will let me know if I can switch. So I checked out the pcp they selected. What a joke. This doctor has been practicing for 30yrs. Graduated from Universidad Central Del Este. You think I want my care from someone that studied at a third world school. Plus very small practice. Only sees Humana patients.
So I went to their web site. Registered. The site said I will have to wait 5 to 7 business days for verification to surf the site. Now I am scared that their whole list will be of reject type doctors.
I will update as this ordeal goes. Let me know if anybody else has good or bad experiences. Thanks!
So I went to their web site. Registered. The site said I will have to wait 5 to 7 business days for verification to surf the site. Now I am scared that their whole list will be of reject type doctors.
I will update as this ordeal goes. Let me know if anybody else has good or bad experiences. Thanks!
My Obamacare Ordeal!
lundi 21 décembre 2015
Power wheelchair eval by us?
Hi,
I am planning to buy a power wheelchair after my new work insurance becomes available on January. So, shall we talk about power wheelchair you have experienced?
First of all, I am C5/6 complete.
Currently, I have a Quantum 6000Z and this chair is about 7 years old. Although the chair is old, I have used it once or twice a week until March, 2015. So, my total driving distance is about 2000 miles. My powerchair has tilting and power leg rest features.
What I don't like are
1. middle driving wheel: Provide small turning radius, but I feel much shock on a small uneven surface.
2. Had to replace casters 3 ~4 times: bearing worn out easily.
3. Lubrication leaked from a gear box to electric coils box which is located at a back side of mechanical gear.
4. 6" caster seems small. I would like to have 7" or bigger.
I am thinking about ordering a front wheel driving Permobile power wheelchair, but the price would be a concern. ( I may not need to, but I feel sorry to my company....)
I would like to have tilting, power leg rest, and seat elevation features. Reclining will be nice to have....
Would you share your experience with your power wheelchair? Also, any feedback will be very helpful.
I am planning to buy a power wheelchair after my new work insurance becomes available on January. So, shall we talk about power wheelchair you have experienced?
First of all, I am C5/6 complete.
Currently, I have a Quantum 6000Z and this chair is about 7 years old. Although the chair is old, I have used it once or twice a week until March, 2015. So, my total driving distance is about 2000 miles. My powerchair has tilting and power leg rest features.
What I don't like are
1. middle driving wheel: Provide small turning radius, but I feel much shock on a small uneven surface.
2. Had to replace casters 3 ~4 times: bearing worn out easily.
3. Lubrication leaked from a gear box to electric coils box which is located at a back side of mechanical gear.
4. 6" caster seems small. I would like to have 7" or bigger.
I am thinking about ordering a front wheel driving Permobile power wheelchair, but the price would be a concern. ( I may not need to, but I feel sorry to my company....)
I would like to have tilting, power leg rest, and seat elevation features. Reclining will be nice to have....
Would you share your experience with your power wheelchair? Also, any feedback will be very helpful.
Power wheelchair eval by us?
Paying more for a recalled part due to a conversion
In a nutshell: I have a 2010 Honda Odyssey with a Braun conversion. It's for sale, and upon getting it checked out before-hand at a Honda dealership, they informed me the fuel pump was under recall. The part was ordered, no problem, but after we dropped the van off for the install they called to say that it might be 4-6 hours of labour rather than the usual 1 hour or so because of the conversion and dealing with the lowered floor, etc. Apparently I will be the one responsible for that part of the bill.
Has anyone else run into this? Why should I have to pay anything, much less upwards of $600, to replace a part that's under recall? I wouldn't be replacing the part at all if Honda hadn't installed shitty fuel pumps, conversion or no conversion.
Has anyone else run into this? Why should I have to pay anything, much less upwards of $600, to replace a part that's under recall? I wouldn't be replacing the part at all if Honda hadn't installed shitty fuel pumps, conversion or no conversion.
Paying more for a recalled part due to a conversion
will a twinXL mattress fit a homecare bed?
I have been Rxd an Invacare 5410IVC bed with half rails (sleep surface = 36"x80"). I have a TwinXL Tempur-Pedic mattress (39"x80"). Will my mattress fit the bed?
will a twinXL mattress fit a homecare bed?
anyone hear of new anti constipatio oral med for people that are opioid pain patients
i thought i saw a medical commercial concerning a new med for opioid constipation, i had tried the injection a couple times, i forget what that was called, but i am sure it is along the same lines.
anyone hear of new anti constipatio oral med for people that are opioid pain patients
Handcycle
Hi everyone, I just joined the forum after purchasing my first handcycle and was referred to this site to get information pertaining thereto. From looking at the threads in this subforum ("Exercise & Recovery"), I am not sure if there is a more specific subforum that deals with handcycles...if so, please point me in that direction. If not, expect me to have lots of questions.
Look forward to learning from you guys!
Jesse
Look forward to learning from you guys!
Jesse
Handcycle
Exercise and training, which direction might be best?
https://youtu.be/gSUmls1iX-8
Here is a video from about two months ago of some things I was working on. The video shows my limitations but I don't think it shows my potential. Anyway, I'm always trying to get stronger and be more functional and just reach for the ability that I know I have. I will always be disabled yes but I know I can be much better. I'm still struggling to figure out exactly what I need to do, the best simple but effective exercise routines that will increase my ability. So in the mean time I do what I can. A few weeks ago someone told me to lookup the angry quad on youtube, if you are interested in a serious workout plan for quads that will bring results I highly recommend looking him up. One of his focuses is doing core work from the floor. He has been a great motivation to me.
Anyway, here's where I'm at: I'm doing my exercise routines regularly. I have a friend that says he will help me with my workouts maybe once a week since we both work. I think a friend willing to help may allow me to work on a few things that I otherwise wouldn't be able to. But what things should I focus on is what I'm trying to figure out. Maybe practicing standing up from my chair? Maybe practicing situps from the floor? The time he helps me I want to find a few key routines to practice that will make a great impact on my abilities. Any thoughts? I have an incomplete sci and reliant on a chair and my left side is weaker but I know I can do almost anything. The first try may not be too good but with dedicated time and training I know improvements will happen.
I'm also trying to figure out what equipment I can add to my routine that might help. I have 3 things I'm thinking of, I think they will all help but trying to figure out which to add first.
1. The human trainer suspension trainer, here's a video: https://youtu.be/-GVHXcfL7JM I think straps like this attached securely can offer a lot of training options. Maybe I can do it cheaper with someone to install ceiling mounts and just use store bought straps? But I really like this one better than any others I've seen out there. One reason being the different levels you can attach your handles or attachments to instead of having to readjust when needed.
2. Homemade parallel bars to practice walking safely without my gait trainer and maybe practice squats safely. I think this kind of design looks safe and hopefully not too expensive: http://ift.tt/1ZlzfUg
3. I use a gait trainer, the up n free from easy walking. It has a bicycle seat and waist strap and lets me practice walking safely with little assistance. Of course a regular walker would be better but I wouldn't put in as much work day in and day out with relying on someone else to always walk with me every step just to be safe. But, I'm wondering if I put these arm attachments on a regular walker to strap my arms securely if I could walk safer with a regular walker and be on the full weight of my feet / legs more? http://ift.tt/1ZlzfUi
Those are my 3 thoughts at the moment. For me practicing walking is great and a must but I also try to be careful of putting all my focus on walking and neglecting full body improvements like core and arm and shoulder and even leg movements that are not practiced with just stepping forward movements. So out of the 3, thoughts / ideas / priority / suggestions please?
What I'm also trying to gain is a understanding of is how the body and limbs move and figure out which movements and exercises are more important than others. Being in a wheelchair I have forgotten how the body naturally works. Sometimes I watch able bodied people do simple things without thinking and try to figure out what muscles need to be strengthened and practiced to do those things. Arms, core, legs, it's simple enough to say work those areas, but with limited time and there being 500 different ways to workout I hope to find a few routines that I can go hard at and know I'm doing the right thing for my desired results instead of just doing something day in and day out and hoping it's a good routine.
I appreciate all the help and knowledge shared. Always keep trying guys.
Ian
Here is a video from about two months ago of some things I was working on. The video shows my limitations but I don't think it shows my potential. Anyway, I'm always trying to get stronger and be more functional and just reach for the ability that I know I have. I will always be disabled yes but I know I can be much better. I'm still struggling to figure out exactly what I need to do, the best simple but effective exercise routines that will increase my ability. So in the mean time I do what I can. A few weeks ago someone told me to lookup the angry quad on youtube, if you are interested in a serious workout plan for quads that will bring results I highly recommend looking him up. One of his focuses is doing core work from the floor. He has been a great motivation to me.
Anyway, here's where I'm at: I'm doing my exercise routines regularly. I have a friend that says he will help me with my workouts maybe once a week since we both work. I think a friend willing to help may allow me to work on a few things that I otherwise wouldn't be able to. But what things should I focus on is what I'm trying to figure out. Maybe practicing standing up from my chair? Maybe practicing situps from the floor? The time he helps me I want to find a few key routines to practice that will make a great impact on my abilities. Any thoughts? I have an incomplete sci and reliant on a chair and my left side is weaker but I know I can do almost anything. The first try may not be too good but with dedicated time and training I know improvements will happen.
I'm also trying to figure out what equipment I can add to my routine that might help. I have 3 things I'm thinking of, I think they will all help but trying to figure out which to add first.
1. The human trainer suspension trainer, here's a video: https://youtu.be/-GVHXcfL7JM I think straps like this attached securely can offer a lot of training options. Maybe I can do it cheaper with someone to install ceiling mounts and just use store bought straps? But I really like this one better than any others I've seen out there. One reason being the different levels you can attach your handles or attachments to instead of having to readjust when needed.
2. Homemade parallel bars to practice walking safely without my gait trainer and maybe practice squats safely. I think this kind of design looks safe and hopefully not too expensive: http://ift.tt/1ZlzfUg
3. I use a gait trainer, the up n free from easy walking. It has a bicycle seat and waist strap and lets me practice walking safely with little assistance. Of course a regular walker would be better but I wouldn't put in as much work day in and day out with relying on someone else to always walk with me every step just to be safe. But, I'm wondering if I put these arm attachments on a regular walker to strap my arms securely if I could walk safer with a regular walker and be on the full weight of my feet / legs more? http://ift.tt/1ZlzfUi
Those are my 3 thoughts at the moment. For me practicing walking is great and a must but I also try to be careful of putting all my focus on walking and neglecting full body improvements like core and arm and shoulder and even leg movements that are not practiced with just stepping forward movements. So out of the 3, thoughts / ideas / priority / suggestions please?
What I'm also trying to gain is a understanding of is how the body and limbs move and figure out which movements and exercises are more important than others. Being in a wheelchair I have forgotten how the body naturally works. Sometimes I watch able bodied people do simple things without thinking and try to figure out what muscles need to be strengthened and practiced to do those things. Arms, core, legs, it's simple enough to say work those areas, but with limited time and there being 500 different ways to workout I hope to find a few routines that I can go hard at and know I'm doing the right thing for my desired results instead of just doing something day in and day out and hoping it's a good routine.
I appreciate all the help and knowledge shared. Always keep trying guys.
Ian
Exercise and training, which direction might be best?
How do you take your cranberry pills?
I've recently started taking cranberry pills. The 25,000 Dosage. Do you take it once in the morning and once at night or do you take both pills at the same time? I just got out of the hospital and not even two weeks later already have a re currants of bacteria.
How do you take your cranberry pills?
Computer screen suddenly fading getting dimmer
At one point something I saidwhile dictating with Dragon made my computer screen fade out a bit. Does anyone know what commands it might haveheard and where I would fix it?
Computer screen suddenly fading getting dimmer
In hospital with cellulitis and UTI
Going on day six but probably going to be discharged today. I'm concerned about the AD that I'm experiencing every time I move, my BP goes way up and I get a screaming headache. Fortunately, it's only for a minute but it's almost to the point that it scares me to move. I've read that the cellulitis is extremely painful, so I'm assuming that would be what's causing this? Is there any specific medication to alleviate this? They have been giving me BP medication although I've never taken it in the past.
In hospital with cellulitis and UTI
dimanche 20 décembre 2015
Deathstar
I picked up some genetics in Oregon on the way back from my thanksgiving trip to San Diego (Was scheduled to pick up clones in SD too but guy flaked) Anywho, I grabbed two Deathstar clones while in Oregon in case one did not make it and they have both been doing well. Since I only need to keep one of them and this round of flower is a battle to see who gets to stay in my garden I wanted to throw the offer out there if anyone wanted to trade. Know that this has not been flowered to personally verify (as I got it after Thanksgiving flower will start end of Jan) but I have heard that it is good for what that's worth *shrugs*
Anyway since the garden is so full I am only looking for a few strains which I will list below:
UW Purple (my old one bleed purple when topped so extra points if yours does too)
Golden Goat
Smelliot
These are the only strains I have any interest in, others will be considered but most likely turned down. If I do not find anyone who wants to trade I will most likely either give the plant to a friend or cut it down.
Pic is of the extra (Oregon) Deathstar.
image1 (1).JPG
Anyway since the garden is so full I am only looking for a few strains which I will list below:
UW Purple (my old one bleed purple when topped so extra points if yours does too)
Golden Goat
Smelliot
These are the only strains I have any interest in, others will be considered but most likely turned down. If I do not find anyone who wants to trade I will most likely either give the plant to a friend or cut it down.
Pic is of the extra (Oregon) Deathstar.
image1 (1).JPG
Deathstar
Head rest/High Back For Wheelchair
There are lots of places that sell cushions for the seat of a wheelchair.
Does anyone know where I can get a high back or head rest to attach to the back of a wheel chair?
Does anyone know where I can get a high back or head rest to attach to the back of a wheel chair?
Head rest/High Back For Wheelchair
Wheelchair:Prevent Caster Wheels from Pivoting: Caster Swivel Wheel Locks
My Mom lives in an old house not designed for wheelchairs, and has taken to using a wheelchair.
It has an old elevator that a standard wheelchair will NOT fit on.
After much effort, I have found the biggest wheelchair that will fit on this elevator. The problem is, the caster wheels swivel. When they are rotated part of the way, the chair won't back out of the elevator.
Does anyone know how I can lock the caster wheels so they don't swivel/pivot? There must be a product designed for this purpose. Not sure what it would be called, though.
It has an old elevator that a standard wheelchair will NOT fit on.
After much effort, I have found the biggest wheelchair that will fit on this elevator. The problem is, the caster wheels swivel. When they are rotated part of the way, the chair won't back out of the elevator.
Does anyone know how I can lock the caster wheels so they don't swivel/pivot? There must be a product designed for this purpose. Not sure what it would be called, though.
Wheelchair:Prevent Caster Wheels from Pivoting: Caster Swivel Wheel Locks
Looking for new backrest
Hello,
does anyone have a 17" Roho or J3 backrest that they want to sell or trade?
does anyone have a 17" Roho or J3 backrest that they want to sell or trade?
Looking for new backrest
Help with the other board?
Hey Everyone,
I have been hanging out on the other (NWLink) board as well. Yesterday I found that I could not log in. I have tried the password recovery several times.
Instead of receiving an email assisting me with password reset I get nothing or I get a blank email from the board.
Anyone have suggestions as to how to resolve this?
Thanks
I have been hanging out on the other (NWLink) board as well. Yesterday I found that I could not log in. I have tried the password recovery several times.
Instead of receiving an email assisting me with password reset I get nothing or I get a blank email from the board.
Anyone have suggestions as to how to resolve this?
Thanks
Help with the other board?
Reinstatement and Trial Work Period
I was on ssdi and started working full time at a job for 3 months and made more than the allowed amount. I was taken off ssdi but I got my pay reduced and quit that job because I got written up for low productivity. I started another full time job immediately and only worked there for 3 weeks and quit that job too. I was jobless for all of October and they reinstated my ssdi payments through expedited Reinstatement. Then I got yet another full time job in November and reported this to social security. They resubmitted the info and the time to wait for the money started again. Now a lady told me I am getting back pay for October November December and it's a significant amount of money. I read somewhere that if you lose your job and get expedited Reinstatement within 5 years of losing your ssdi benefits that you trial work period will begin anew like it never happened. Is this true?
I had a trial work period already and completed it. I was only off my benefits a month or two. I'm so confused. I am just trying to find out if this money will be an overpayment or if my payments will continue due to new trial work period. Thanks for any info!
I had a trial work period already and completed it. I was only off my benefits a month or two. I'm so confused. I am just trying to find out if this money will be an overpayment or if my payments will continue due to new trial work period. Thanks for any info!
Reinstatement and Trial Work Period
Reinstatement and Trial Work Period
I was on ssdi and started working full time at a job for 3 months and made more than the allowed amount. I was taken off ssdi but I got my pay reduced and quit that job because I got written up for low productivity. I started another full time job immediately and only worked there for 3 weeks and quit that job too. I was jobless for all of October and they reinstated my ssdi payments through expedited Reinstatement. Then I got yet another full time job in November and reported this to social security. They resubmitted the info and the time to wait for the money started again. Now a lady told me I am getting back pay for October November December and it's a significant amount of money. I read somewhere that if you lose your job and get expedited Reinstatement within 5 years of losing your ssdi benefits that you trial work period will begin anew like it never happened. Is this true?
I had a trial work period already and completed it. I was only off my benefits a month or two. I'm so confused. I am just trying to find out if this money will be an overpayment or if my payments will continue due to new trial work period. Thanks for any info!
I had a trial work period already and completed it. I was only off my benefits a month or two. I'm so confused. I am just trying to find out if this money will be an overpayment or if my payments will continue due to new trial work period. Thanks for any info!
Reinstatement and Trial Work Period
samedi 19 décembre 2015
Auto hand controls
Getting a new van and I'd like to read any opinions you may have on push/rock hand controls. I have Sure-grips now. They have worked out pretty well but the rock seems a little imprecise. Dealer is recommending MPS but I've never been a big fan of their controls. Mainly considering the MPD 3300 but I have not been able to actually touch them. Only pictures and videos.
Auto hand controls
Guitar effects processor " Hot Hand wireless ring effect processor?
Has anyone here used the hand-activated Hot Hand or Hot Hand 3 wireless guitar effects processor from Source Audio? It is a ring that maneuvers the wah wah effects instead of a foot pedal. It looks like the original version has more "custom-ability" than the newer "3" version. I'm wondering if it is a stand-alone effects processor or if it is intended to be plugged into another type of filter/processor.
Guitar effects processor " Hot Hand wireless ring effect processor?
Transferring into your Handcycle and Back - any Tips and Techniques
I recently bought a handcycle (Force RX), and I'd be interested to hear your tips and techniques for transferring into a handcycle and back. Yes, I've seen the YouTube videos of flawless transfers. They look great and maybe I'll get there someday with practice. I'm assuming that others have developed some tricks along the way that work for you. Any tips would be greatly appreciated.
I'm looking into buying a bath chair lift (thanks John for the tip!), which should help me get started.
Thanks!
I'm looking into buying a bath chair lift (thanks John for the tip!), which should help me get started.
Thanks!
Transferring into your Handcycle and Back - any Tips and Techniques
vendredi 18 décembre 2015
When one castor stops touching the ground all the time is that the rubber on the whee
When one castor stops touching the ground all the time is that the rubber on the wheel wearing out or has something gotten out of alignment? My castors are 8 yrs old and I have not had any problem with bearings but recently I've noticed that one of them is not always touching the ground. Do I just need to order a new wheel or is there a way to lower it so it will touch?
When one castor stops touching the ground all the time is that the rubber on the whee
Can any of the wheelchair experts here...
Suggest a good site or book regarding maintenance of a modern wheelchair. I tried using my 6 month old rigid chair today and I cannot get a wheel axle to insert into the camber plug, no matter how hard I try. It might be time for me to learn how to maintain these seemingly very breakable items.
Also, can anyone suggest a a few sites from which I might order a good folding chair? Obviously there are dozens out there, and several recommendations in the sticky post above, but I have never ordered a chair online and would love a site that at the very least tried to explain most optional features.
Thank you.:salute:
Also, can anyone suggest a a few sites from which I might order a good folding chair? Obviously there are dozens out there, and several recommendations in the sticky post above, but I have never ordered a chair online and would love a site that at the very least tried to explain most optional features.
Thank you.:salute:
Can any of the wheelchair experts here...
Anyone being effected by the FLSA final decision?
http://ift.tt/1NC7i37
I'm losing my live-in aide that I've had for 3+ years to this bs. Medicaid currently does not compensate for the overtime so every agency has decided you must have two aides as the overtime is more than medicaid compensates for... and you can not directly pay the agency the overtime because they already got paid for the aide's service. Even consumer directed personal assistance programs are effected and anyone else who has a live-in is forced to have a separate aide to compensate for this law. Unless you're rich and can pay the whole aide's salary with your own money. This is such fucking bs! /lyingpolitician "We're ADDING new jobs". No you're not, you're splitting up jobs! How is a live-in a live-in when they're there only for 3-4 days? They clearly stated that a live-in must be on the premise for at least 5 days or 120 hours. Medicaid pays up to 10 hours a day so I don't see how they could pass this without adjusting medicaid payout first.
Has anyone else started to experience this. Apparently this law was being appealed for years and the final decision was two months ago. I'm just now being effected as the agency I deal with has found a second aide to stand in. This was also delayed because my aide is going away tomorrow for 3 weeks.
There must be a partition or something we can start? I wish I knew about this years ago. It's really depressing... my setup was easy with no real bs for the last 14 years. Now I'm going to have to deal with aides not showing up and it change the atmosphere in my house from a home to a hotel. I'm sure they'll blame it on global warming.
I'm losing my live-in aide that I've had for 3+ years to this bs. Medicaid currently does not compensate for the overtime so every agency has decided you must have two aides as the overtime is more than medicaid compensates for... and you can not directly pay the agency the overtime because they already got paid for the aide's service. Even consumer directed personal assistance programs are effected and anyone else who has a live-in is forced to have a separate aide to compensate for this law. Unless you're rich and can pay the whole aide's salary with your own money. This is such fucking bs! /lyingpolitician "We're ADDING new jobs". No you're not, you're splitting up jobs! How is a live-in a live-in when they're there only for 3-4 days? They clearly stated that a live-in must be on the premise for at least 5 days or 120 hours. Medicaid pays up to 10 hours a day so I don't see how they could pass this without adjusting medicaid payout first.
Has anyone else started to experience this. Apparently this law was being appealed for years and the final decision was two months ago. I'm just now being effected as the agency I deal with has found a second aide to stand in. This was also delayed because my aide is going away tomorrow for 3 weeks.
There must be a partition or something we can start? I wish I knew about this years ago. It's really depressing... my setup was easy with no real bs for the last 14 years. Now I'm going to have to deal with aides not showing up and it change the atmosphere in my house from a home to a hotel. I'm sure they'll blame it on global warming.
Anyone being effected by the FLSA final decision?
Tix to Tampa Bay Bucs vs Chicago Bears
Does anyone have, or know anyone who has tickets to sell for this game? I wanted to take my two boys to their first NFL game, but I'm having no luck finding wheelchair tix. Tried the stadium and Stub Hub.
Tix to Tampa Bay Bucs vs Chicago Bears
Wanted--SureHands Ceiling Track
I need 4 pieces of SureHands ceiling track. 100"-80"-73" & 65" Will buy other SureHands Ceiling Lift Equipment
Wanted--SureHands Ceiling Track
Quickie qm-710 questions
I have MS and have had this chair about six months. I've got tilt and recline, but not lift. It came with abductor knee pads. The tiny pads themselves fall off often. I self-cath by raising my legs up, so i have to turn one of the knee pads down to get my knees apart. I couldn't easily reach the button to turn it down. I noticed it was attached to the chair on a track, so i had my caregiver try to move it. But it actually couldn't be reattached on the track. So she put it back where it was, and it subsequently fell off. I can't find any manual for the ab pads. Just the chair as a whole not including the pads.
Does anyone have any experience with these pads.?
And I have lots of other questions to like the controller seems flaky sometimes., The arm rest will not stay level, and doesn't flip out of the way correctly, it stammers whencoming out of tilt, the calf pads move out of place, the footplate ....etc
yes, my dealer should help, but i really don't want to be totally dependent on them. I've got the tools, i want to fix some of these little things myself.
Does anyone have any experience with these pads.?
And I have lots of other questions to like the controller seems flaky sometimes., The arm rest will not stay level, and doesn't flip out of the way correctly, it stammers whencoming out of tilt, the calf pads move out of place, the footplate ....etc
yes, my dealer should help, but i really don't want to be totally dependent on them. I've got the tools, i want to fix some of these little things myself.
Quickie qm-710 questions
Mouth stick
Does anybody that uses a mouth stick make their own? I am looking for the aluminum to make the stick itself, similar to those used by Preston Sammons, but without the ridiculous markup.
Mouth stick
For Sale: Ricon 6 Way Power Transfer Seat Base
This is a gently used item removed from a low mileage vehicle. It has been tested and operates smooth and quiet in all 6 directions. I would prefer LOCAL PICKUP ONLY!!! in the Las Vegas, Nevada area. (Description from the manufacturers site) Ricon 6-Way Power Transfer Seat Base The Ricon 6-Way Power Transfer Seat Base provides convenient and time saving transfers from wheelchair to driver or passenger seat. Operation is simple. With the press of a finger, the fully automatic Power Transfer Seat Base swivels 90 degrees with individual controls for front to rear travel and height providing complete control and comfort. Ricon quality assures dependable service. Fingertip control Fits most full-size vans Adaptable to most seats Adjustable to rotate left or right Completely automatic rotation.
Looking to get $400.00 P.M. me for photos
Looking to get $400.00 P.M. me for photos
For Sale: Ricon 6 Way Power Transfer Seat Base
looking for sure-hands body support
looking for the scissor body support. pm me please if you have one to sell.
looking for sure-hands body support
Future of spinal cord injury
Hi all
Hope everyone is fine.
I want to know about the future of spinal cord injury. What are the procedures or technologies from which we have big hope for curing spinal cord injury or making life of sci people easy?
Hope everyone is fine.
I want to know about the future of spinal cord injury. What are the procedures or technologies from which we have big hope for curing spinal cord injury or making life of sci people easy?
Future of spinal cord injury
20 year old needs help ordering wheel chair
Hello there! Is anyone awake right now who can help me with an order form on a ti-lite! I am 20 years old and getting my first wheel chair... Long story. I'm unable to walk long distances... My doctor and I are very close so he said fill out the forms and I'll sign them! So I just have a couple questions!
20 year old needs help ordering wheel chair
jeudi 17 décembre 2015
1967 Vw Beetle Rhd Restored 1600dp
1967, Right hand drive, 1600db new Rebuild. Incredible sound system, new heater, porsche rims, air ride front end, alarm system, h.i.d headlights, pearl paint. Incredibly sound Type one. Needs nothing
Looking at cash, car trades, or meds.
PM for pictures
Looking at cash, car trades, or meds.
PM for pictures
1967 Vw Beetle Rhd Restored 1600dp
Is there a 100% voice-activated phone?
Isthere any cell phone you can activate and use just by voice, without firsthaving to push a button?
Is there a 100% voice-activated phone?
Bhombtubes package for sale
Hello NWGT
Posting for a friend. Two 26" DO bhombtubes with one way solvent valves, packing rods, and tons of extra filters of different micron sizes. Comes with a stand that holds both tubes. 650 Cash or trade
PM with questions
Posting for a friend. Two 26" DO bhombtubes with one way solvent valves, packing rods, and tons of extra filters of different micron sizes. Comes with a stand that holds both tubes. 650 Cash or trade
PM with questions
Bhombtubes package for sale
Roho Jet Stream Pro Standard Back
Roho Jet stream Pro for sale. Standard back. 14" wide x 16.5" high with Adjustable Mounting hardware. Cushion cover is a little worn but the back and brackets are in excellent condition. $ 170.00 shipped in the U.S. Email joe at joemonte@nep.net. if interested. Happy Holidays to all!
Roho Jet Stream Pro Standard Back
Can someone tell me if these tires would fit my rims?
These are the tires I am looking at http://ift.tt/1mpZLhg ... Can someone tell me if any of the sizes would fit the standartd 24 inch quickie rim. There are 2 sizes on the tire that I have on now (37-540) and 24 x 1 3/8 I am looking for something a little narrower. Or if anyone has bought these tires, could you give me a review of them. Thanks!
Can someone tell me if these tires would fit my rims?
25" Sun wheels with Carbon Fiber Handrims
I have an extra set of Sun Wheels available for sale. The wheels are lightly used (excellent condition) and the carbon fiber handrims are brand new, unused. Very lightweight combination at only 2lb.-8oz. per wheel. To put that in perspective, a Topolino CF wheel with aluminum handrim is about 2lb.-2oz. and they'll set you back $1000+. These are both weights w/o tires and tubes.
Tires, tubes and axles not included.
Bearing spacing is 2" (uses 1/2" dia. axles)
25" wheels (for 559 tires)
Price is $600 shipped to US only.
Tires, tubes and axles not included.
Bearing spacing is 2" (uses 1/2" dia. axles)
25" wheels (for 559 tires)
Price is $600 shipped to US only.
25" Sun wheels with Carbon Fiber Handrims
baby powder or butt paste
My mom said that I've been getting raw after bowel programs. Should I use baby powder or butt paste to stop that? There's a red area now, so I've been trying to keep the pressure off as much as possible. Should I put butt paste on it now or is it more of a preventative thing?
baby powder or butt paste
Pot for spasticity
I have MS and now use medical marijuana. It's specifically working for bladder spasticity - I didn't realize what a huge issue i had. I have a baclofen pump, but this seems to take the edge off all my spasticity.
Pot for spasticity
mercredi 16 décembre 2015
Education
We tried a fun & simple experiment with pipe cleaners in a plastic bottle. You just cut the pipe cleaners into small pieces and put them inside an empty bottle. Then use a magnet to attract and move the pipe cleaners around in the bottle. My kids thought it was pretty cool. They also experimented a little by adding in other small magnetic objects making it react differently.
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MAGNETIC SCIENCE FUN
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MAGNETIC SCIENCE FUN
Education
Syringomyelia and arachnoiditis
Original Injury C3 C4 unilateral facet dislocation Nov. 1975. Age 15 playing American Football (initial ASIA A. Recovered to ASIA D). No motor return for 34 days. Very Crude posterior column return 1 day post injury. Eventually ruled central cord syndrome. Initial management traction and closed reduction. Cervical myelogram with pantopaque day following injury. No block. Not stable. ASF January 1976. 7 months in hospital. Walked out with 2 canes. Went back to school. Graduated physical therapy school. Married 5 children. Could run, play recreational basketball, cut lawn, etc. 10 or more years ago started slowing down. Unable to play basketball. More problems walking, tripping. Progressive back pain consistent with spinal stenosis. C4 5 fused in 1994 due to HNP and loss of function right shoulder and elbow. Marked improvement post surgery. Also started to gain weight due to decreased activity. Now 6'1", 245 pounds. New weakness right arm 2009. MRIs showed no real change. Surgery not recommended. Walking kept on getting worse. Lumbar spine workup negative.
Eventually thoracic spine looked at in August 2014. Arachnoiditis Ossificans T 8- T 10- 11 with associated syringomyelia. Surgery Oct. 2014 in New York to remove adhesions. Syrinx left alone and did not go down at time of surgery. Some question that it may have decreased post surgery. Woke up with marked deterioration in motor and sensory function. Sensation with very modest improvement since then. Slow improvement for 6 weeks. Could walk 80-100' max with walker and w/c follow. Then things fell apart. No new trauma. MRI November 2014 ( 6 weeks post surgery). Status post posterior decompression at T8-T9 and T9-T10. 9.7 x 1.9 x 1.9 cm epidural fluid collection along the posterior aspect of the thecal sac, not seen on the prior study extending from T7 to the level of T10 with severe mass effect on the cord which is diffusely anteriorly displaced. There is an associated 2.4 x 0.5 x 0.4 cm simple appearing cystic lesion along the posterior surface of the cord extending from the level of T8 to the level of T9. Increased signal involving the cord extending from the level of T10 to the level of T12, increased compared to the prior study. This could represent dilatation of the central canal versus cord edema. No abnormal enhancement. No longer able to walk. Marked deterioration in motor function.
Slow improvement in motor function since February 2015. Now able to walk 60' max with walker and w/c follow with therapist. Marked spasticity. syrinx now as high as level T4. Recent workup in Miami. New CT and MRI. Scheduled to get shunt placed January 2016 (Central canal to peritoneal cavity). Adhesions to be left alone. Too severe. No CSF movement at first surgery. Per surgeon this was restored at time of surgery. Present status unknown but doubtful. Adhesions related to pantopaque? No history of trauma to thoracic spine. No history of infection, etc.
Anyone with any experiences with above problems. It is hoped that taking pressure off of cord will reduce pressure on nerves and decrease spasticity and improve motor function. Any other way to deal with this problem?
Thank you for your input.
John
Eventually thoracic spine looked at in August 2014. Arachnoiditis Ossificans T 8- T 10- 11 with associated syringomyelia. Surgery Oct. 2014 in New York to remove adhesions. Syrinx left alone and did not go down at time of surgery. Some question that it may have decreased post surgery. Woke up with marked deterioration in motor and sensory function. Sensation with very modest improvement since then. Slow improvement for 6 weeks. Could walk 80-100' max with walker and w/c follow. Then things fell apart. No new trauma. MRI November 2014 ( 6 weeks post surgery). Status post posterior decompression at T8-T9 and T9-T10. 9.7 x 1.9 x 1.9 cm epidural fluid collection along the posterior aspect of the thecal sac, not seen on the prior study extending from T7 to the level of T10 with severe mass effect on the cord which is diffusely anteriorly displaced. There is an associated 2.4 x 0.5 x 0.4 cm simple appearing cystic lesion along the posterior surface of the cord extending from the level of T8 to the level of T9. Increased signal involving the cord extending from the level of T10 to the level of T12, increased compared to the prior study. This could represent dilatation of the central canal versus cord edema. No abnormal enhancement. No longer able to walk. Marked deterioration in motor function.
Slow improvement in motor function since February 2015. Now able to walk 60' max with walker and w/c follow with therapist. Marked spasticity. syrinx now as high as level T4. Recent workup in Miami. New CT and MRI. Scheduled to get shunt placed January 2016 (Central canal to peritoneal cavity). Adhesions to be left alone. Too severe. No CSF movement at first surgery. Per surgeon this was restored at time of surgery. Present status unknown but doubtful. Adhesions related to pantopaque? No history of trauma to thoracic spine. No history of infection, etc.
Anyone with any experiences with above problems. It is hoped that taking pressure off of cord will reduce pressure on nerves and decrease spasticity and improve motor function. Any other way to deal with this problem?
Thank you for your input.
John
Syringomyelia and arachnoiditis
Just saying hello to some, hang in to others
It has been a long while since I stopped by. Injured 7 years ago and had a very rough start. I am doing much better and since relocating to Arizona the pain and drain is not as bad. So, hello to those who might remember me, and hang in there to all of you new gimps. As someone who had no hope for the future seven years ago, trust me, it will get better, then worse, and better. Drink your water, eat your fruits and veggies, follow a strict B program, and hang in there. The holidays are still my least favorite time of the year but it is almost over, bright side.
Just saying hello to some, hang in to others
Walking Para, looking at left medial meniscus tear, what options?
I am a walking para. L1 Burst, S1 para complete. For several months I have been having knee pain in left knee. Since October is has been increasing and finally had a doctor appointment today. When I walk, the weakness in my legs is causing my instep of the left foot to rotate inward putting pressure on the inside of my left knee. Doctor examined today and thinks I have a medical meniscus tear. He is sending me to a orthopedic specialist to be evaluated further. Have any walking paras had issues with their knees from the way they are forced to walk due to weakness in legs? If so what treatment has helped. I really don't want surgery if it can be helped, but I don't want any more damage either from walking differently. Are there certain questions I should ask and how do I know they are taking my entire situation into consideration? I need them to realize that this is not just a knee. This is going to effect everything from my back, hips, si joints, knees, legs, ankles, mobility, etc. I don't want to end up with someone who only looks at the knee and not the entire picture of what is going on. Any info would be great. Thanks.
Walking Para, looking at left medial meniscus tear, what options?
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