I had a bunch of heart tests on the 23rd. the potts, (postural orthostatic tachycardia) has turned into something else that is constant.
I ran out of good days some months ago, and can no longer stand more than a few minutes without crazy heart and extreme sweating.
buckets of sweat.
crazy heart wakes me up all night long. the sweating at night is incredible.
of coarse menopause is a thing to consider. But this has been more debilitating than my sci has been all these years.
I cannot shop, go fishing, walk my incredible dog, ride my trike, play my musical instruments, or clean my apartment. I have stopped driving again, because it would be irresponsible to consider it safe if I cannot know when or why the thing will happen.
when I go to the Dr now I see her eyes almost glaze over when I tell her its just getting worse, I feel like Im going to die.
she wants to put my back on the pain meds, would like me to take clonazapam "to calm me down" and prescribed an antidepressant.
I took one pill, and I thought it was going to kill me. my heart was twerking and felt like it was flopping like a flat tire.
the flat tire feeling happens as my heart begins to slow after an episode. It did that for several more days.
I let her know that the antidepressant did that, and no one believed it until they looked up side affects and it was confirmed as a possible side affect. I took this antidepressant after my accident. It did not have any adverse affects, and in fact worked well at a low dose.
I told her im only feeling anxiety when Im going to the dr. I don't think they understand how bad this is.
she did a fairly thorough physical exam. she seemed hasty and a little bored while she listened to my heart. it thumped and began to flop while I was laying there, and then my entire body was soaked with sweat.
I could tell she was no longer so bored as she tried to listen closer. the thing stopped though.
it was enough though to get some heart tests, started with the halter monitor for 24 hours.
my GP said now make sure you take a shower, and vacuum, and all the things that cause the thing.
the first thing the person putting on the monitor said is you are not allowed to take a shower, or vacuum or touch things plugged an electrical socket. all the things that would guarantee an episode were not allowed because it would damage the device or alter the test.
as it is, the thing happened all night, and up until an hour before the tests was over.
My GP said it was nothing much, and I about died. im sure she saw my shock.
then she said well there are skipped beats, and it shows very slow beats followed by very fast beats.
its nothing though.
I couldn't not get teary eyed.
my weight has steadily increased while my ability to eat has not. I look pregnant, and my feet and hands are obviously swollen with fluid.
Its extremely painful to stand. my bones hurt, to stand. my feet are incredibly painful. its not nerve pain, its real pain.
both wrists subluxate, as do the ankles knee's and first finger joints. the GP is puzzled by this but agree's that is what it looks like. that fluid is pushing the small bones apart. no need for an ex ray, she can push my wrist bones back and forth with her fingers.
the swelling is what got me the heart tests.
one day an eye swelled up, a few days later it went down and the other eye swelled up.
I have a steady cough that has no reason. one day I started coughing up blood. not much, it stopped after few days, but not the cough. it happens when the heart goes nuts.
On the day I got those heart tests, they made me drink a lot because the person who put in the Iv said I was dehydrated. I told him Iv been drinking gatoraid for days like the dr ordered.
on that day my cath volumes plumeted to almost nothing. they said drink more gatoraid. I told them something strange is going on with my eyes. I can see all the veins on the inside of my eyes, and see the fluid move when I turn my head, and an intense flash in my eyes. I asked if someone was taking a picture because the flash was that real. they never heard of such a thing.
by christmas eve, I had gone to 6-8 hour caths just to have something come out.
yesterday only two caths ten hours between. I can tell its affecting my brain. I can type what im thinking, but cant get all my words from my brain to my mouth. if I try to talk about something, its like I have ADD. reaching for words is like reaching to the top shelf of a dark closet. a shelf too high for me to reach.
last night I noticed my fingertips were bluish. my lips have a dark look, and when the fingers get blue so do my lips. my palms get red, fingers get white, tip get bluish. if I take many deep breaths the bluishness goes away.
I asked roomie if he saw it too and he did.
this morning I had a respectable pee. it seemed to go on forever, but it has no color to it at all. 640ml
two hours later, same thing. it's 600ml of clearness.
is it clear because Im so blown up? or because stuff isn't being filtered out? I do feel its easier to breathe, and I can tell I will need to cath again after only an hour. is it a stone?
my kidney function tests have been normal, and though I feel kidney pain. there is no UTI.
the sweating is not as bad as it has been for weeks and weeks, and my heart feels a bit less crazy, so I don't know if my heart is making my kidneys crap our or if my kidneys are making my heart go nuts.
I know only that it has defeated me, and ruined my life.
I ran out of good days some months ago, and can no longer stand more than a few minutes without crazy heart and extreme sweating.
buckets of sweat.
crazy heart wakes me up all night long. the sweating at night is incredible.
of coarse menopause is a thing to consider. But this has been more debilitating than my sci has been all these years.
I cannot shop, go fishing, walk my incredible dog, ride my trike, play my musical instruments, or clean my apartment. I have stopped driving again, because it would be irresponsible to consider it safe if I cannot know when or why the thing will happen.
when I go to the Dr now I see her eyes almost glaze over when I tell her its just getting worse, I feel like Im going to die.
she wants to put my back on the pain meds, would like me to take clonazapam "to calm me down" and prescribed an antidepressant.
I took one pill, and I thought it was going to kill me. my heart was twerking and felt like it was flopping like a flat tire.
the flat tire feeling happens as my heart begins to slow after an episode. It did that for several more days.
I let her know that the antidepressant did that, and no one believed it until they looked up side affects and it was confirmed as a possible side affect. I took this antidepressant after my accident. It did not have any adverse affects, and in fact worked well at a low dose.
I told her im only feeling anxiety when Im going to the dr. I don't think they understand how bad this is.
she did a fairly thorough physical exam. she seemed hasty and a little bored while she listened to my heart. it thumped and began to flop while I was laying there, and then my entire body was soaked with sweat.
I could tell she was no longer so bored as she tried to listen closer. the thing stopped though.
it was enough though to get some heart tests, started with the halter monitor for 24 hours.
my GP said now make sure you take a shower, and vacuum, and all the things that cause the thing.
the first thing the person putting on the monitor said is you are not allowed to take a shower, or vacuum or touch things plugged an electrical socket. all the things that would guarantee an episode were not allowed because it would damage the device or alter the test.
as it is, the thing happened all night, and up until an hour before the tests was over.
My GP said it was nothing much, and I about died. im sure she saw my shock.
then she said well there are skipped beats, and it shows very slow beats followed by very fast beats.
its nothing though.
I couldn't not get teary eyed.
my weight has steadily increased while my ability to eat has not. I look pregnant, and my feet and hands are obviously swollen with fluid.
Its extremely painful to stand. my bones hurt, to stand. my feet are incredibly painful. its not nerve pain, its real pain.
both wrists subluxate, as do the ankles knee's and first finger joints. the GP is puzzled by this but agree's that is what it looks like. that fluid is pushing the small bones apart. no need for an ex ray, she can push my wrist bones back and forth with her fingers.
the swelling is what got me the heart tests.
one day an eye swelled up, a few days later it went down and the other eye swelled up.
I have a steady cough that has no reason. one day I started coughing up blood. not much, it stopped after few days, but not the cough. it happens when the heart goes nuts.
On the day I got those heart tests, they made me drink a lot because the person who put in the Iv said I was dehydrated. I told him Iv been drinking gatoraid for days like the dr ordered.
on that day my cath volumes plumeted to almost nothing. they said drink more gatoraid. I told them something strange is going on with my eyes. I can see all the veins on the inside of my eyes, and see the fluid move when I turn my head, and an intense flash in my eyes. I asked if someone was taking a picture because the flash was that real. they never heard of such a thing.
by christmas eve, I had gone to 6-8 hour caths just to have something come out.
yesterday only two caths ten hours between. I can tell its affecting my brain. I can type what im thinking, but cant get all my words from my brain to my mouth. if I try to talk about something, its like I have ADD. reaching for words is like reaching to the top shelf of a dark closet. a shelf too high for me to reach.
last night I noticed my fingertips were bluish. my lips have a dark look, and when the fingers get blue so do my lips. my palms get red, fingers get white, tip get bluish. if I take many deep breaths the bluishness goes away.
I asked roomie if he saw it too and he did.
this morning I had a respectable pee. it seemed to go on forever, but it has no color to it at all. 640ml
two hours later, same thing. it's 600ml of clearness.
is it clear because Im so blown up? or because stuff isn't being filtered out? I do feel its easier to breathe, and I can tell I will need to cath again after only an hour. is it a stone?
my kidney function tests have been normal, and though I feel kidney pain. there is no UTI.
the sweating is not as bad as it has been for weeks and weeks, and my heart feels a bit less crazy, so I don't know if my heart is making my kidneys crap our or if my kidneys are making my heart go nuts.
I know only that it has defeated me, and ruined my life.
peepee problems
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