Will be 33 year post on Friday. Have had incredible pain in my bladder for the last month and every symptom of a urinary tract infection is happening to me.
As far as I'm concerned what is happening is what is described in this letter my doctor had me take to the emergency room.
I'm not voiding the blood because I'm doing intermittent catheterizations I'm doing like 10 a day. The pain is relieved a little bit when there no urine in my bladder.
Unfortunately the doctor wrote this letter had a stroke and retired but came to see me earlier this year when in the hospital deciding whether to remove the suprapubic or not.
He even used to call me on weekends when I was not even sick.
How do I get the medical community to read this letter and believe that's what's happening to me I know my body.
May 27, 2005
To whom it may concern:
Cris is a 44 years-year-old young man who I have the following for probably 20 some odd years or so. He is approximately 24 years or 25 posts C7 quadriplegia.
He has done very well. He is quite fastidious individual. As many people with neurogenic bladder he does have occasional urinary tract infections. Sometimes these can be fairly resistant to oral medication. They usually are accompanied by gross hematuria, autonomic dysreflexia, which is not an uncommon problem in quadriplegics.
Rarely does Cris run fever and chills. Sometimes with this condition the cultures because of his urgency frequency have been negative despite responding the antibiotics.
Usually I will omit the patient for 48 hours because the autonomic dysreflexia is so bad and there is so much diaphoresis I usually given IV antibiotics until urine culture returns.
He does of come to the emergency room somewhat frequently, but no more than 2 to 4 times in one year. Of course I am not always on call, the sometimes even when I have been on call, the ER personnel have not let me know that he has been in the ER. I do not mind even if I am not on call admitting the patient because as urinary tract infections are otherwise usually uncomplicated.
I do suggest an ultra-sound or occasional spiral CT scan to make sure he has not developed any stone but he has not done so today.
He usually empties his bladder with crede and uses a condom catheter and generally empties fairly well. I have never documented any decision energy.
Again, generally when Cris comes to the emergency room, I believe, he really needs to be admitted for 48 hours even those white count is temperature will be normal. With the onset of autonomic dysreflexia, a CVA can occur.
Thank you for your close attention.
As far as I'm concerned what is happening is what is described in this letter my doctor had me take to the emergency room.
I'm not voiding the blood because I'm doing intermittent catheterizations I'm doing like 10 a day. The pain is relieved a little bit when there no urine in my bladder.
Unfortunately the doctor wrote this letter had a stroke and retired but came to see me earlier this year when in the hospital deciding whether to remove the suprapubic or not.
He even used to call me on weekends when I was not even sick.
How do I get the medical community to read this letter and believe that's what's happening to me I know my body.
May 27, 2005
To whom it may concern:
Cris is a 44 years-year-old young man who I have the following for probably 20 some odd years or so. He is approximately 24 years or 25 posts C7 quadriplegia.
He has done very well. He is quite fastidious individual. As many people with neurogenic bladder he does have occasional urinary tract infections. Sometimes these can be fairly resistant to oral medication. They usually are accompanied by gross hematuria, autonomic dysreflexia, which is not an uncommon problem in quadriplegics.
Rarely does Cris run fever and chills. Sometimes with this condition the cultures because of his urgency frequency have been negative despite responding the antibiotics.
Usually I will omit the patient for 48 hours because the autonomic dysreflexia is so bad and there is so much diaphoresis I usually given IV antibiotics until urine culture returns.
He does of come to the emergency room somewhat frequently, but no more than 2 to 4 times in one year. Of course I am not always on call, the sometimes even when I have been on call, the ER personnel have not let me know that he has been in the ER. I do not mind even if I am not on call admitting the patient because as urinary tract infections are otherwise usually uncomplicated.
I do suggest an ultra-sound or occasional spiral CT scan to make sure he has not developed any stone but he has not done so today.
He usually empties his bladder with crede and uses a condom catheter and generally empties fairly well. I have never documented any decision energy.
Again, generally when Cris comes to the emergency room, I believe, he really needs to be admitted for 48 hours even those white count is temperature will be normal. With the onset of autonomic dysreflexia, a CVA can occur.
Thank you for your close attention.
how do I get the doctors to understand in this day and age?
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