How to be a good "mentor" to someone with a new sci?

So mentor doesn't feel like the right word, but you know what I mean, someone who has been injured for a while, then you meet/know someone who is newly injured. I definitely had someone to mentor me through the fucked up part of being a new SCI and navigating through rehab and reentering "real life". She has since passed away, and I actually never met her in real life, but she was an incredibly important person in my life nonetheless.

Recently someone I know somewhat peripherally was injured and I reached out, but wasn't sure what to say. Obviously I know there are times that someone newly injured would not want to converse with a chronic SCI like myself, because obviously the hope is that the new injury will not be permanent or at least there will be significant recovery. So I sent a simple email like "hey, sorry, sucks to break your back. Been there. Lemme know if u want to talk. If not that's cool too. Buena suerte."

Obviously couched it a little more diplomatically than that, but after rewriting the email a half dozen times, I was never able to make it "feel" right. I guess the important pay is to let them know you're there to listen and advise if they want, but what would youse guys say in that situation?

How to be a good "mentor" to someone with a new sci?

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schedule? muscle groups, how many times per week for progress?

I'm trying to improve so I exercise regularly. But I can't do everything everyday so I'm trying to figure out a schedule that will help. I do exercise from my chair, then I also use a up n free walker which I was doing almost everyday. Now I decided I need to try the regular walker with platform attachments. And I try to use a easy stand glider. I can do my exercise from my chair quite a few days a week on my own time with no assistance so not too much of a problem there. But with two walkers and a glider I need assistance and it's usually afternoons after a long day at work. So I can only do one of those things a day. Up n free is good, I just need help getting in it and I can walk unassisted, but I realized the seat is not allowing me to progress like I should if I want to improve and see better more natural ambulation. So my wife started helping me with the regular walker, not easy, I can take about 5 steps so far. So I think I need to keep trying but also other days use the up n free so I can go 150 steps at least and keep my endurance. And then I have the easystand glider that I know is good for me to use. And then I have other training that I know would be good. How do I portion out what I do without not doing something too little to be of much value?

A friend told me today that he thinks if you work a muscle group really well two times a week that it should be enough for success. Thoughts? I'm not trying to do the minimum for success but trying to figure out to do several different things enough to benefit.

A regular walker that I need help with but improve the more I try, a gait trainer that lets me go farther but limits some progress overall, a easystand glider that I'm not actually walking in but am on my feet - As far as the importance of each of these how would you rate them?

Muscle groups like arms, legs, core, how many times a week if one expects to see progress?

Weekends I should be able to do more but during the week am looking to make the most of how and what I train.

I appreciate any help with scheduling workout ideas.

Thank you

schedule? muscle groups, how many times per week for progress?

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Permobil C500VS Stander Drive Standing, Sittiing - Head Array - Only 5 miles, used 1x

Well this has been covered up since it was "delivered new in October 2014". It can be used with the "Head Array" (has proximity switches) or with the joystick. There isn't a single mark on it. Batteries have been kept up. Can deliver anywhere. Has a light kit, Color monitors, EZ Lock, Permolock, ESP, Medical necessities backpack, big angle adjustable tray, etc... Was over $62,000. Asking $21,995 or $19,995 without head array just with a standard headrest..

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Permobil C500VS Stander Drive Standing, Sittiing - Head Array - Only 5 miles, used 1x

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Pressing

I just met a couple of young guys that showed me how they were pressing wax out of buds!
I smoke some of their product it was very nice it looked like
Wax and there is no chemicals or solvents used
Wondering if anyone else has done this seems new to me but I like itGD

Pressing

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Best Hand Controls for Mazda 5 - recommendations Please?

Folks, I have a 2014 Mazda 5 and would like to know which hand controls you all use on yours? I have my MPDs from my old Mazda MPV but they look Way too bulky for the "5". I would like to find some which provide the cleanest, least obtrusive installation as I still have to get my legs in there. So, please tell me what you use? Oh, I use left hand push, angle down style controls. Thanks FairTradeM&M


"FairTradeM&M - A dream that one day equipment suppliers will provide the disabled with fairly priced products like the rest of the world. Obviously that day has not yet arrived, pity!"

Best Hand Controls for Mazda 5 - recommendations Please?

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New T7 injury

Hello all,

I am new to this forum. My husband is 32 and suffered what we believe is a T7 complete injury in December. He went in for abdominal aortic aneurysm surgery and, we believe, suffered a spinal cord infarction. He was in ICU for 52 days, a step down unit for 10 days, and now he is on day 4 in inpatient rehab. He has had medical issues his entire life, but this is a whole different ball game. We are at the point where we don't know what we don't know. We know that the following things have to happen:
1. He has to get a chair. His inpatient rehab will be evaluating him and helping with this.
2. We have to make modifications to our home.
3. We have to figure out what resources are available to him for ongoing care after inpatient rehab.

We really wanted him to go to Shepherd Center, but they wouldn't take him because he is on dialysis due to an acute kidney injury, also suffered during the surgery. So he is at rehab at the same hospital where the surgery took place. Maybe he will be able to go to Shepherd at some point in the future. I know we have a ton to learn--I think this forum will be very helpful. Thanks.

New T7 injury

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Preparing to renovate for accessibility--platform lift recommendations?

Hello!

This is my first post. My husband suffered a T7 injury in December as a side effect of aortic aneurysm surgery.

We own a 2-story 1926 bungalow in Tampa. We love this house and selling is not an option for us (we would likely take a bath on it, since we just bought it a year and a half ago, and we would still be in need of accessible housing but we wouldn't have any money to spend on making it accessible). So we are interviewing contractors to start renovating.

We know we are going to need a platform lift to travel up and down the stairs. (He has been in inpatient rehab for 3 days so it's way too soon to know whether he'll be able to transfer... so I would rather plan to install the platform lift.) We want something that will require a minimal amount of reinforcement in the wall. I know this will be approximately a $10,000 purchase, and it's something I know almost nothing about (and I'm not in the habit of spending $10,000 on anything without researching it thoroughly). Does anyone have a platform lift they can recommend? Are there any that we should steer clear of? Advice would be greatly appreciated. Thanks!

Preparing to renovate for accessibility--platform lift recommendations?

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Power chair and Medicare/Medicaid

I'm finally having to get a power chair to help me out some since i have this ulnar nerve entrapment in my left elbow. My Tilite Aero-Z is still going strong and i will be using it a lot.

Has anybody on here with Medicare/Medicaid gotten a power chair lately? I'm wanting to know what brands and models they will pay for these days.

I'm used to picking and specking out my own chairs. I've been doing it 14 years. I don't want to just take whatever the DME wants to give me.

Any ideas on good chairs with tilt would be greatly appreciated. I don't know anything in the power chair game.

Power chair and Medicare/Medicaid

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Okay NASCAR fans, come and play Yahoo! Fantasy NASCAR 2016!!!!!!

Okay NASCAR fans, come and Play Fantasy NASCAR on Yahoo.com.

Join Yahoo's Fantasy NASCAR at the following link:
Click Here to Join Yahoo Fantasy NASCAR

Join the following group:
Group ID#: 3386
Password: just4fun
The group name is: Enjoy the Outdoors!

Feel free to invite any other NASCAR fans who might be interested in joining also. The more people we have the more fun it will be!

If you need help joining, just shoot me a pm...

Okay NASCAR fans, come and play Yahoo! Fantasy NASCAR 2016!!!!!!

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Peco 12FR Int. Caths - Free

One of my Wheelin' members donated 2 big boxes of intermittent caths to me and I have been unable to find anyone locally that is interested. Each box contains a couple hundred caths. If you can use these, pay the shipping cost, and they're yours.

(Yellow lab, antler table and wheelchair not included.)

Peco 12FR Int. Caths - Free

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The unique Spinal Injury Research Team approach at University of Aberdeen

The Spinal Injury Research Team aims to develop a multifaceted approach, combining innovative bioengineering methods and novel electrical, topographical, and chemical stimuli for nerve regeneration. The team was established in 2014 and first called the Aberdeen Nerve Repair Group.

2 Video's Available:

LINK

The unique Spinal Injury Research Team approach at University of Aberdeen

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A troubled and enigmatic character

Created by artist Rob Liefeld and writer Fabian Nicieza, Deadpool first appeared in 1991: The New Mutants # 98 was the magazine where he launched his first dart and released its quirky charms.
Cancer victim and disfigured by the disease itself, Wade Winston Wilson -?lter ego personage came to stick his suit out of desperation.


He was cured of cancer, yes, but never imagined what would become after the cruel experiment that saved him. The Canadian paramilitary Weapon X applied to Wade in a laboratory for unknown purposes, mad forever but also injected him from power.Watch deadpool Online

A troubled and enigmatic character

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Shin Splints

Has anyone ever had to deal with this before?

I was running on the treadmill today and my shins got sore. I didn't think anything of it as I just assumed it was regular fatigue. However, several hours later and they are still sore. I've been trying to find out what's wrong with them and so far, everything is pointing to shin splints.

For now, all I've done is RICE it. There's no swelling but I'll see how it goes in the morning.

What are your thoughts?

Shin Splints

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Any older sci patients out there dealing with partial rotator cuff tear

I have had a partial rotator cuff tear for about 6 months now and was wondering if anyone else has advice on managing the injury. Cotizone shots are out for me as I had a bad reaction when I had one for my injured thumb a few years ago, it sent me weird in the head for some reason and my doctor said I reacted to the steroid component which made me very moody almost aggressive . I am a incomplete T4 38 years post transverse myelitis with chronic neuro pain to add to my joys. I saw a physio once every 2 weeks for treatment and do my rehab exercises at home now as acupuncture didn't do much good

Any older sci patients out there dealing with partial rotator cuff tear

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Chair Weight

Does anyone get their chair weighed? If so, what is the weight of your current manual use chair? I had my chair weighed recently and it came in at 32.6 lbs, which seems way to heavy feeling. Now i'm regretting letting my grievances with Tilite cloud my better judgment and put me back in a Quickie.

Chair Weight

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Zika and Microcephaly and the Rio Olympics

I cannot imagine.

I say cancel the Olympics or have them somewhere else.

These kids will never show emotion, see or hear and require 24hr care. Kudos to the families that take that on. :(

Zika and Microcephaly and the Rio Olympics

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Swollen leg red and warm with UTI side effect? have others had this?

Just met with Infectious /disease Doc about chronic UTI Over past 11 years have 50 plus UTI's various bugs cultured at over 100,000 Of those 50 or so infections about 12 have been serious 7 day fever very sick etc. 2 of those episodes including the first severe one in 2004 % day hospital stay and the most recent urine culture was negative on almost all the severe episodes my left leg swelled up got red and warm to touch I thought this was a side effect . My Id doc says no possible side effect of uti is swollen leg most likely reoccurring celluitus. Wheras i agree on the negative culture episodes confused on when i had >100,000 colonies Curious if others have had UTI and celluitus symptoms at same time?

Swollen leg red and warm with UTI side effect? have others had this?

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Spinergy Carbon Blade Rims

Hey Guys,

I recently ordered a pair of the new Spinergy Carbon Blade rims from Ti Lite for my new TR. I've been scouring the Internet to find the weight of these new puppies but there seems to be very little information about them. Does anyone know how much they weigh per rim? And are they lighter than the LX's?

PK

Spinergy Carbon Blade Rims

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Bubblemans Bubble-now machine +bags

I have a gently used bubblemans bubble hash machine and bags,

5gal machine
220 micron zipper bag
4 bag bubbleman hash bag set
25/75/120/180

4 bag Payload hash bag set
25/75/90/220

i would like to trade this all off for 1/2 oz of top shatter

if interested please PM me
thanks
GD

Bubblemans Bubble-now machine +bags

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Ford Transit Reviews???

Does anyone have the Ford Transit (the larger van, not the Transit Connect) as a wheelchair van? I'm looking at this van, but it sounds like a lot of adapting. I'm just needing the lift, hand controls and rotating drivers seat to transfer into. We also need seating for about 9. Not asking for much.

Ford Transit Reviews???

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